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Giving Thanks

11/22/2016

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In the early days, when I was scared, when I didn't understand, when my son was struggling so much, it was hard to give thanks. It was hard to see all that was "right" when I was so focused on all that I perceived to be "wrong".

When I worried about him scripting, I couldn't hear him communicating. When I obsessed over his limited eye contact I couldn't see what he needed. With each and every behavior that was "different", I cried out "What is wrong?", so I couldn't see all that was right.

I was blind and my son was trying so hard to help me see. 

Much has changed since those early days, thank goodness, and I have learned that there is so much in my life to be thankful for then, today and tomorrow. Ryan helped me take the blinders off, so now it is easy to see all that is in front of me, and most importantly, all that is in front of him.

As a parent who finally "got it", who finally came to see her son in all his beautiful glory, here are a few things I am thankful for this Thanksgiving and the other 364 days of the year:

1. Awareness. Mine and yours. Whether it's a puzzle piece car magnet, a blue light in April or a teacher who sees past the label and sees my son, I am thankful that the word "autism" has come out from the shadows and we are shedding a light on supports and services for autistic individuals by raising awareness.

2. Education. From family members, to friends, to police officers, to emergency service personnel, people are asking questions, people are taking the time to understand that people living with autism are not bad, or wrong, or less, they are just different.

3. People who "get it". Oh, how I am thankful for the people who get it. The people who don't ask why, but, ask how. How can I help him learn? How can I help him feel safe? How can I let him know I care? How can I support his needs? These folks are at the tippity top of my thankful list.

4. Kindness. Not everyone will ask why or how, not everyone will want a brief Autism 101, but, everyone can be kind. I am thankful beyond words when I witness such kindness.

5. Acceptance. Learning to accept that we all have differences, that we all have areas of strengths and weaknesses and accepting that those differences make us unique and amazing, not "weird" or "bad". Accepting that there are different ways to learn, live and love.

6. No judgement. It's easy to witness a situation, such as a child who seems much too old to be having a tantrum in the middle of the grocery store, and quickly judge the parents and the child whom you do not know. I am so grateful to those who choose to offer help from up close, rather than judge from a distance.

7. Music. Music held the key for Ryan to find his voice and open a door. A door that may have forever remained closed without music. I am so thankful for the power of music and the effect it is has on my boy's confidence. 

8. The Teacher. You know the one. The one who got him from there to here. The one who you know had their paths never crossed, your child would be traveling a very different road. So thankful. So very, very thankful.

9. Forgiveness. All the times I messed up, all the times I thought I finally knew just how to help him and support him, only to realize I didn't. All the times he forgave me because he knew each and every misstep was made out of love, an all consuming love just for him.

10. Patience. Yours, mine, but, mostly his. Patience while we: became aware, educated ourselves, helped others to "get it", remembered to be kind, learned to accept our differences, reminded ourselves to help rather than judge, found an interest that opened a door, waited for The Teacher to come along, and sought forgiveness for all the times we got it wrong.

Yes, I am thankful for all of these things and many, many more, but, mostly I am thankful for my son who proved to me that there was never anything "wrong", other than my perception of what was "right".

So to Ryan, thank you for giving me the opportunity to learn from you, to advocate for you, but, mostly to love you. What a gift you are to me. 


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Dear Ignorance....

11/1/2016

3 Comments

 
Dear Ignorance,

I feel like we've met before. You may not look the same, sound the same or act the same, but, it is you. I'm sure of it. We met many years ago when my child was just a toddler. Then I bumped into you again during the elementary years. I'm pretty sure we were together briefly when my son was in middle school and now, here we are meeting again when he is a teenager. Wow, you sure do get around.

When I went to introduce you to my son, "Ignorance, this is Ryan, Ryan this is....", I slowly trailed off. I saw the look on Ryan's face and I knew that he too has met you before, probably more times than I care to count, and certainly more times than me. Introductions aren't necessary.

I have sat across desks from you, been seated next to you at restaurants and stood in front of you in the grocery line and at every chance encounter, you have made some ridiculous comment that angered, hurt and shocked me. It would have been so easy to just chuck a pencil, a spoon or a can of peas at you and walk away, but, I knew if I did, you would keep coming around again and again hurting my son and other autistic children and adults like him.

Each and every time we meet, I'm astounded by your ability to shock me with your lack of awareness and knowledge. It's like you have a complete disregard for anyone who does not fit into the "normal" mold you have created. All the times we run into you, I try to be patient, I try to be kind, I try to educate, but, for you, ignorance really is bliss.

Sometimes Ignorance, you are in a position of authority. You are suppose to set an example for others to accept differences and see past labels and stereotypes. You claim to want to help my child, you want to see him fit in and be accepted, yet you don't really see him yourself. How can I count on you to help him when I obviously need to help you first?

Oh, I know you have met other autistic kids before, and so in your mind you have "them" all figured out, but, you have not met my child before. And yes, I know you are busy and that there are other neurotypicals surrounding you that make life so much easier for you, but, it is not my son's job to make your life easy. In fact, I believe it is your job to make life, if not easy, at least tolerable for him.


What is most frustrating to me Ignorance, is when you are in a place of power or you are in a leadership role, you have an opportunity to shed who you are and provide an example of awareness, inclusion and kindness, but, you don't. I recognize that in some ways you can't, I mean being unaware is who you are, which is precisely why as his mother I don't chuck the can of peas at your head, walk out, slam the door and give up on you. Giving up on you would mean giving up on my son and that is never going to happen. 

I could tell you that since my son and I have been at this for awhile now, we are sick and tired of the same old song and dance, but, we aren't. Yeah, sure some days we both are astounded by the depth of your obliviousness Ignorance, but, the only way to stop you is to educate you. We won't stop, no matter how many times our paths cross, no matter how much damage you do.

I know that my son and I will continue to bump into you in various places. I'm not naive enough to believe you will go away, but, I do believe that Acceptance, Awareness and Knowledge will one day pave the way for you, but, until they do, I will do the work for them. I will lay the path for Acceptance, Awareness and Knowledge one step at a time, until you finally get it.

I may dread every time I see you coming Ignorance, but, not nearly as much as my son dreads seeing you heading his way. Which is why I will not run away, I will not duck in a corner and pretend to not see you. I must educate you in order for you to see my son so that others around you will see him too.

My son and I would like to say goodbye to you forever, but, unfortunately we know we will meet again. Each time our paths cross, you provide new insight into the depth of your blindness and insensitivity which helps prepare us for the next time we meet and helps us to see how much more work needs to be done.

As much as I despise you Ignorance, I have to admit that you inspire me. You make me want more. More education, more awareness, more acceptance, more compassion. You make me work harder so that my son and others with autism don't have to. I guess in some way, I should be grateful to you.

Here's a heads up Ignorance, you are not bliss, you are harmful, unhealthy and just plain stupid and I really thought you should know.

I wish this was goodbye, but, I know it's more like, until we meet again. My son and I will be waiting. We will be ready. We will prevail. You know why Ignorance? Because Acceptance, Awareness and Knowledge will always have our backs. And with them, Ignorance cannot win. 

Sincerely,

Ryan's Mom


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Ignorance is not bliss, but, this kid sure is!
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