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A Shout Out to All My Fellow Bridges

5/15/2014

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In less than a week, I will be...brace yourselves....45. Yeah, I know how can that even be possible? I swear I look into my mirror, which must obviously be some type of trick mirror since I seem to look so much better in that mirror than I do in any photos (unless the photo is a distant shot, the lighting is poor and airbrushing was used) and I wonder, who is that tired looking stranger in my bathroom? Before I dial 911 to report an intruder wearing a robe exactly like mine, I rub my almost 45 year old eyes and think, "Sh*t. That's me." Some days, I think I would prefer a weird stranger in my bathroom than the depressing, realization that the old, tired reflection in the mirror is the same girl you see on this 1970's metal "swingset". It seems like just yesterday, I was 10, playing outside with friends, getting the star boy kickball player "out" by miraculously catching the ball that knocked me on my ass and watching non-stop episodes of my favorite television show, The Brady Bunch.

PictureChristopher Knight as Peter Brady.
My gosh I loved that Brady family. I mean who didn't want that AWEsome 1970's house with Alice the housekeeper, six kids to play with, a dog named Tiger, and parents who were so dumb they wouldn't let their kids play ball in the house, but, allowed the same kids to naively wear a native taboo Hawiian idol around their neck which almost lead to a deadly tarantula bite. Last week, as I sat anxiously waiting for Ryan's chorus concert, it wasn't "Marcia, Marcia, Marcia" or annoying, put upon middle sister Jan I was thinking about, no, it was the one Brady who rarely stole the show, who sort of blended in to the background, it was Peter and his voice changing hormonal self.

Remember the episode when the Brady kids got an opportunity to sing on live television (of course they did) in hopes of becoming the next Jackson 5, I mean 6 ? All the Brady kids sang like beautiful song birds (each one secretly hoping they would be like Michael and leave the rest of the siblings in the dust), except Poor Peter. No way Peter was going to be the next Michael Jackson, because in that moment when it was Peter's time to shine, his pubescent voice picked that moment as a "Time to Change". Here is a little reminder. I'm sorry (not really).

Now that Ryan has reached the Peter Brady age, I will occasionally hear a Peter Brady "sha na na na na", come out of his beautiful, soulful voice and I wonder how this voice changing thing will effect Ryan's singing. As with all things Ryan, I then begin to worry. What if he can no longer sing? What if he no longer has perfect pitch? What if this God given talent was only doled out temporarily for childhood and with the onset of puberty, this gift will be snatched away as quickly as Cindy Brady's Kitty Carryall Doll? OMG, what if Ryan started sounding like, or even worse yet, started dressing like (gulp) Peter Brady?
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When I asked Ryan about his voice changing he assured me that he can hear the difference in his voice, so he "adjusts it". I don't even know what that means, but, Ryan sounded quite confident and as he took the stage, and the first notes poured out of that beautiful face, I didn't need to understand it, because I could see it and I could hear it. If Peter Brady was on that stage, there were enough other kids on stage with him to drown him out, so that not a single voice cracking "sha na na na na" could be heard. Ryan sang his beautifully, gifted heart out. There were a number of songs Ryan sang that night, but, it was evident that one song in particular he loved best. The one that Ryan felt so deeply, sang so beautifully was the one song that reduced this worrying Carol Brady into a big, heaping puddle of tears.

Ryan's select chorus group sang Bridge Over Troubled Water and yes Ryan sang it, but mostly Ryan felt it. His facial expression, his confidence, his heart, his soul were all on full display, there was no awkward autismy smile trying to hide his feelings, he was fully exposed and he was beautiful. As I sat with tears streaming down my face I couldn't help but picture the depths of troubled water we have crossed together. The worry, the fear, the anxiety we both have had about how to cross that water without falling in and being swept away. I wondered to myself, did Ryan love this song for it's musical score, the notes, the melody, or the lyrics? I don't know why this song stirred Ryan, but, as I felt the melody wrap around me and draw me in, I wondered if Ryan knew, if he had always known, that "I would lay me down" to get him wherever he needed to go, regardless of the water's depth, turbulence and undertow.
When you're weary, feeling small
When tears are in your eyes, 
I will dry them all
I'm on your side
When times get rough
And friends just can't be found
Like a bridge over troubled water
I will lay me down 
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I have been the bridge for my boy. Some days I have been like the Chesapeake Bay Bridge, strong and sturdy, towering high above the water, with not so much as a drop of water splashing my son, and some days I have been a slippery log that has conveniently fallen in just the right place, barely able to hold Ryan up as he slips and slides, to his destination, finally making it across the water to dry land. Although, I may not have always been the sturdiest bridge, in fact more times than not, my bridge should have been closed due to "instability", rated as "structurally deficient" and at high risk of "failure", but, somehow, regardless of the degree of deterioration, I managed to get Ryan across the troubled water. Regardless of how many storms this old rickety bridge has weathered or how many times this shaky bridge was stepped on, trod across, or flooded, I never once let my boy plunge head first into the water. Sure, like most of us, he has gotten wet from time to time, but, I have always been there to get him safely to the other side where he could dry off, change course, if necessary, and move on.

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Like most of my fellow mama bridges, there were many days when the structural integrity of my bridge was compromised due to wear and tear, cracks in my towers, and years of being barraged by turbulent waters, and AWEnestly, my boy got wet. Unlike most bridges, we mama bridges do not have a built in accelerometer to alert us to deficiencies and deterioration. There was no way to determine if too much stress and fatigue was being placed on the bridge, increasing the chance that my occupant might fall into the cold, unforgiving water. However, as I watched my son sing, as I watched him achieve, as I watched the confidence soar from his heart as easily as the notes flew from his soul, I recognized that some of the falling, some of the getting wet, and yes, even some of this bridge's "structural deficiency" enabled Ryan to appreciate this moment. All the bridges Ryan had to navigate to cross that troubled water lead him to this moment, where he is today and without having to occasionally struggle to get across that water, he would not fully recognize the beauty of what it is to make it to the other side.

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On the days when the water looked calm and serene to me, without warning, Ryan would see a tsunami coming. Regardless if I saw the wave coming or not, this bridge had to be open, this bridge had to be structurally sound ready to bear the weight in order to get Ryan safely across the water. Other days, when to me the water seemed choppy, and everywhere I turned there were whitecaps stirring in the water, I would do a quick safety check, ensuring that my towers were sturdy and my cables were strong because come hell or high water, I had to get my boy across that water, and just like that, Ryan would calmly walk across the bridge without even a backward glance at what I perceived as troubled water.

To all my fellow bridges out there, who safely get their child from point A to point B across that real or perceived troubled water, no matter how deficient and deteriorated you may feel, you always have to be structurally sound, because for a child with an ASD, even the calmest water can look like a deadly whirlpool. There is no time to determine if you are "structurally deficient" or "functionally obsolete", your passenger is counting on this bridge and whether or not your passenger decides he needs to cross this bridge today to get him across that water, or if he decides to take another route altogether, what matters most is that your amazingly AWEsome passenger knows, that for him, you will always "lay me down".

On the days where you feel like a fallen over, moss covered log that got lucky and just happened to land across the water, and on the days where you are as structurally sound, and as meticulously constructed as the Golden Gate Bridge, you still get your passenger across that water. We bridges, no matter our rating, get our passengers where they need to be, and we will always get them where they need to go. So, here's to you all my bridges.

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As the last notes of Bridge Over Troubled Water echoed off the school auditorium walls and off my ready to burst with pride heart, I was in AWE of my AWEsome boy. In that moment, I felt certain that Carol Brady and her perfectly coiffed hair, never felt the pride I felt for my Peter Brady (as an aside, unlike Carol Brady, I would never allow Ryan to wear a taboo Hawaiian idol on his neck or that hideous shirt as seen on Peter in the above video). A "Time to Change" may be on the horizon, but, this bridge, regardless of my instability, my deterioration, and my current safety rating, will be there to hold my boy up as he crosses whatever troubled water lies ahead. 

Ironically, in 2013 the average age of bridges in the US was 42 years of age and the bridge safety rating was a C+. On some days, when I am "structurally sound, but functionally obsolete", that age and rating sounds and feels about right, for this tired, old, weary bridge. However, on most days when this bridge feels new, sturdy, and strong, I guarantee, that regardless of my age, regardless of what I see in that damn, lying, bathroom mirror, and regardless of what grade the Federal Highway Administration feels I deserve, I know one passenger who on most days, would give me an A+...ok, fine, maybe just an A...as long as I get him over the water and he doesn't get too wet.

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The Early Bird Gets the Choice Donut

3/6/2014

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I looooove Saturday mornings...sleeping in, no early morning kid activities, and long leisurely breakfasts in my jammies with my hot off the presses, just delivered on Friday, People Magazine. My little piece of heaven. So, when I have to get up early on a Saturday, I am not only tired from celebrating the arrival of the weekend by watching three back to back episodes of Breaking Bad until the wee hours of the morning, I'm grumpy too. "The early bird gets the worm", so goes the old proverb, but, this past Saturday, Ryan and I weren't going for worms (I could just hear his annoyance at such a stupid saying), we were embarking on a 45 minute road trip with a quick stop at Dunkin Donuts. Here's the thing, Dunkin Donuts makes donuts ALL DAY LONG. Oh sure, they want you to believe that their donut baker lumbers out of bed with the early bird while moaning, "Time to make the donuts" so you feel rushed to be the FIRST ones in line for the freshest, choice donut, but, it's all a scam. You can be the late bird and still score a tasty, trans fat and cream filled donut. 

Ryan was about as thrilled as I was with the early morning Saturday change in routine, so instead of telling him the "early bird gets the worm" (eyes roll), I told Ryan the early bird gets the choice donut. Yeah, I'm as big of a phony as the "time to make the donuts" guy. Ryan whined, complained and stumbled out of bed and refused to brush his teeth because it would "ruin" the taste of the coveted donuts (he popped in a piece of gum after the donuts which I know a dentist would not approve of as a toothbrush substitute). Before we headed out the door, I was ordered to fill Ryan's Thermos with Welch's Grape Juice because my boy's elephant memory, recalled that Dunkin Donuts does not have Welch's Grape Juice and that their orange juice has pulp in it (the horror). We early birds, were so early, Ryan and I even had time to go inside Dunkin Donuts and peruse the plethora of choices rather than risk a donut catastrophe at the drive thru. Once we recovered from the near meltdown that took place when my early bird spied the strawberry iced donuts being placed on the shelf after our order was placed, bagged and paid for (clearly when it was "time to make the donuts" the strawberry iced ones weren't at the top of the old, tired baker's list), we were on our way, to our real destination.
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Ryan loves a road trip, and I love having him in the passenger seat next to me (even though I stress a little because I know he is safer in the back, but, now that he is 12 and the law says he can ride up front, there is no going back...figuratively and literally). Quality time, just the two of us, enhanced with a little donut sugar high. I tried for a while to chit chat, but, after being grunted at numerous times, I gave up and was equally happy listening to my boy singing, scripting and laughing at whatever show he was watching inside his head. In that moment, I sort of related to that early bird and his successful worm hunt, although I was tired and longed for my leisurely breakfast while happily admiring Matthew McConaughey in a black tuxedo (sorry Matthew, the white was a little too Saturday Night Fever for me) in People, maybe getting up early, really did enable me to score the coveted worm.

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Although I was enjoying the morning, I didn't get out of bed early and leave the Oscar predictions in my latest People Magazine sitting on the kitchen table for Dunkin Donuts. Nope, our destination was a Music Festival at a local college for piano students. This was Ryan's first time attending so I had no idea what to expect and for a boy who likes a plan and struggles with "new", he didn't know what to expect either. Ryan's fabulous piano teacher had written out a schedule for him instructing him when to be where. First up on the list, was a workshop on the Progression of Left Hand Accompaniment Patterns. What? I made Ryan LOL, even though he shushed me with embarrassment, when I did my best Charlie Brown's teacher impersonation. I am completely illiterate when it comes to anything music, so this professor's "wah, wah, wah, wah, wah", was like a foreign language to me. I tried to pay attention, but, after Ryan moved two rows in front of me, not because I was such an embarrassment to him, but, because the professor told him to (although, I'm sure he was relieved to put some distance between himself and his musically inept mother), I found my mind start to wander. 

As I sat waiting for the workshop to end, I began to worry about Ryan's "adjudication" on his piano skills which would be next. Ryan would be judged on various piano playing skills while in a room...alone...without me. As my anxiety began to escalate, awaiting this so called, "adjudication", I couldn't help but recall a different type of adjudication that I regularly attended as a juvenile probation officer. Waiting for a judge to make a different kind of adjudication for a different kind of kid. As a juvenile probation officer, it was my job to provide testimony to the court about the juvenile who stood next to me. I couldn't help but compare my role as a mother whose job it was to protect, advocate and fight for my child being that much different, yet, I struggled with whether or not Ryan would object to my testimony or if the judge would find my testimony relevant. 

I wondered, if at this adjudication for my child, do I present the facts...all the facts, or do I let Ryan take the stand on his own without my testimony? Will Ryan incriminate himself when he doesn't make eye contact with the judge? Will the judge think Ryan is rude if he forgets to say, "thank you" or ignores a question the judge asks that has nothing to do with the piano? What if Ryan drops his paper and refuses to pick it up because he hates the feel of paper? Will the judge think Ryan is not taking his adjudication seriously? Will Ryan's flat out refusal to put on a name tag because stickers have caused him anxiety since he was two, make him appear defiant? If Ryan refuses to take his coat off because the hot air blowing from the vents makes his skin feel dry and scratchy, will the judge think Ryan has no respect for the Music Festival, the adjudication and the piano itself? There was a whole lot going on in my scary head for a 45 minute piano workshop. 
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This battle going in my psyche came to a standstill when I watched Ryan practice in a sound room minutes before his adjudication. It was then that I decided not to hang my kid out to dry (he would have assured me he was not wet). I decided that if I don't want a label to define Ryan, even when his quirks and social struggles make him stand out, then I can't define him with that label at every turn either. There are times when The A Word, has to be mentioned...at a 504 Plan Meeting with school officials, at the dentist office when they realize total sedation will be necessary to fill a cavity (or three), at the pediatrician's office when a strep test is necessary, or at the hair salon when it's a new stylist, but, not at a piano adjudication. This was not because I didn't want Ryan to do well. It was not because my lack of interest in music minimized the importance of music to my son. The reason I let Ryan take the stand on his own was because unlike those courtroom adjudications when my words were needed to describe the juvenile standing before me, my words were not needed before a judge in a sound room. Sharing words....sharing The A Word, was unnecessary because this was music and music is one place where Ryan's quirks and differences disappear into the ivory of the keys.

I wished Ryan luck, although I knew it was not necessary, and Ryan walked past me, piano books in hand, a smile on his face and no name tag whatsoever. As I heard the judge greet Ryan, Ryan mumbled a monotonic, "hello", then he quietly closed the door and left me to wait on the other side. This was new for me, being on the other side of the door, not being Ryan's voice. Although I trembled with nervous energy, I had never been more proud of my son. As I listened through the door, frustrated that I didn't bring a cup to hold against the door to enhance the sound (AWEnestly people, I can't cut the cord completely), I did not hear Ryan speak in his British accent scripting Stampylonghead in a diatribe about Minecraft, I did not hear Ryan stumble over his words with his sometimes "cluttered" speech and I did not hear Ryan complain about the heat blowing out of the vents. All this spying, worried mom heard, was the beautiful sound of Ryan's fingers finding the right chords, timing his intervals and "expanding the use of the keyboard" as Ryan's label, his quirks, his differences, dissipated with each beautifully played note.
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I all but fell into the room once Ryan finished and opened the door, and I quickly and discreetly wiped away my tears so Ryan wouldn't reprimand me for being "too proud". Ryan bounced out of the room and said, "That judge guy was AWEsome and he said I did great!". In fact, "that judge guy" gave Ryan the highest marks, "superior", in every category with the exception of one "excellent". Clearly, Ryan did not need my testimony, the facts of who he is and what he is capable of, were evident without any input from me. I did not need to share The A Word with the judge who adjudicated my son because he did not need words or a label to see Ryan's ability. There will always be times when Ryan's quirks will make me want to quickly defend him by throwing that A Word under the bus, but, more and more, Ryan doesn't need excuses, labels, or me defining him. Ryan is finding his own place in the world, and as he has told me time and time again, "I don't feel different, I just feel like me."

This is one early bird, who is so glad that my love of sleep, a late breakfast and a date with People Magazine did not cause me to miss the worm. Not because I wanted the fattest worm or the choice donut, but, because I got to spend a day with someone who constantly puts the AWE in AWEsome. Someone who will never let a label, a judge or even his mother, define him. Some days it takes me longer to wake up than others. This past Saturday, even with my donut sugar high, it took me all day to wake up, but, when I finally did, I realized that even a full page spread of Matthew McConaughey playing strategically placed bongos in People Magazine, takes a back seat to the wonderfully gifted piano player sitting in the front seat next to me. 

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    Definition of Awe:
    "a mixed emotion of
    reverence, respect, dread and wonder inspired by authority, genius, great
    beauty, sublimity or might." Yep, someone should have consulted a mom 
    before
    spelling AWEtism.

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