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"Inside Out" Gave Me a Glimpse From the Outside In

7/1/2015

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PictureDisney Pixar's "Inside Out"
Spoiler alert! There are some references to Disney Pixar's new movie, Inside Out in today's post!

Every summer, you can count on at least one trip to a dark, cold movie theatre for a kid movie, even though we spend all winter long dying to be outside in the bright, hot sun. Last week was our trip. Twenty-seven dollars later, Ryan, Emma and I were nestled in our big, sticky (gross) theatre seats with our popcorn and sodas along with hundreds of other little rugrats. As much as I sometimes loathe a kids movie, this one, I was excited to see. This one looked unique, different and fun. Little did I know, this movie, Inside Out, would not only entertain me, it would allow me an opportunity that I have waited years for...a glimpse from the outside in. 

Ever since we heard The A Word, I have thought countless numbers of times, "if I could just get inside his head to see what he's feeling" to try and understand Ryan better. Just a quick peak inside that big brain of his to know exactly what is going on in there. This desire has burned even stronger this summer as puberty, and the pendulum of emotions that goes with all that hormonal upheavel, has lead Ryan to spend countless hours alone in his bedroom seeming to find so little joy in the things he once loved. Not knowing what's going on inside that hormone fueled brain of Ryan's, has lead this mother to lie awake at night for countless hours worrying.

Since autism causes Ryan to struggle with expressing his emotions, unless he is on the extreme end of joy or anger, it's hard to know what he is feeling, so as his mom, it's hard to know what to do and how to ensure he is "happy". And there it is. The word every mother lives by and lives for, "I just want him to be happy". Sometimes, it's hard to know if he is.

Along with wanting to know "what's going on in there" I have also expressed, out loud, to anyone who would listen, hundreds of times, "I just want him to be happy" not knowing exactly what happy meant for Ryan. Happy to me means, parties, friends, social outings and endless hours of phone calls, texting and social media check in's. Although I'm perfectly aware that is not what makes Ryan happy, since I can't get inside his head to figure out what does make him happy, I'm left to try and figure it out while standing on the outside desperate to look in.  

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Ironically, after years of anguishing, after years of wondering what was going on inside Ryan's head, it took Disney Pixar approximately 102 minutes to show me that not only did I struggle to understand the emotions going on inside my beautiful boy's mind, he struggled to make sense of them too. Thanks to Inside Out, Ryan finally got to "see" Joy, Sadness, Anger, Disgust and Fear and how all those emotions make you feel. Thanks to Disney Pixar, these emotions were finally explained in a way Ryan understood, quite possibly for the first time. And this mom, got to get a glimpse from the outside in and what I saw made me recognize just how hard it has been for Ryan to understand all those emotions running around in his head. 

As I sat surrounded by hundreds of children crunching popcorn, slurping soda and giggling at the antics of emotions running around inside the main character Riley's head, I heard none of it. As the theatre screen illuminated with Pixar only brilliant colors and the occasional light of a cell phone breaking through the darkness, I saw none of that. What I heard instead, was Ryan's giggles, his tears and his sniffing as the emotions in Riley's brain impacted the emotions in Ryan's brain. What I saw, was something beautiful, something I had spent countless hours trying to see and something I paid multiple therapists to help Ryan find. In that darkened movie theatre, with the glow of the screen on his almost man like face, I saw recognition, understanding and that light bulb moment when it all comes together and the power that understanding gave to my son. 

Ryan watched on the big screen the struggle with emotions that goes on inside all of our heads and how sometimes even though we know what we feel, we are unable to share those feelings. Whether it's Joy, Sadness, Anger, Fear or Disgust taking over the controls inside our head, sometimes, it's hard to let others know which emotion is running the show. 

Inside Out also showed Ryan that things that once gave us joy as a child, no longer do as we get older, and sometimes that makes finding Joy difficult. Ryan has tried to tell me repeatedly he is "done with swimming" and that "swimming in no longer part of his life", yet, he can't explain why. As I watched Riley's childhood imaginary friend, Bing Bong disappear into the rubble of childhood, I saw our swimming pool go with him. I have no doubt in that light bulb moment for my son who knows in some ways he is "different", Ryan understood that when it comes to how he feels, how those emotions wreak havoc in his brain, and how childhood Joy is replaced sometimes by Sadness, Anger, Fear and Disgust, that he is not so different than other kids. 

Like so many moms sitting in the theatre that day, I recognized that I'm not so different than most moms either. We all want our kids to be happy, and we want nothing more than to protect them from sadness. I learned from tiny, Pixar cartoon character emotions, that all kids, have to experience sadness from time to time to help them find joy. I learned that like many kids, Ryan may not be able to express what he is feeling and sometimes that's because of The A Word, and sometimes it's because understanding our emotions, autism or no autism, is just hard.

Of all the Disney moments I have shared with my kids over the past 17 years, last week was the most valuable moment of all. When Ryan's light bulb went on, so did mine. As I watched it all come together for him, it came together for me too. I finally realized that as much as I want to be on the inside trying to understand how he feels, making sure he is happy, what matters most is that he understands, that he gets it, and that he knows it's okay to feel Sadness, Anger, Fear and Disgust when Joy occasionally gets lost. 

Regardless of who is at the controls of Ryan's emotions, he needs to be the one to figure it out on the inside. Even if he can't say it, he is the one who must feel it, understand it and process it. And even though sometimes it kills me to be on the outside, unable to look from the inside out, that is where I need to be, ready to help Ryan embrace whoever is at the controls and do what I can to help him find joy, in his time, in his way....not mine.

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I may not know "what's going on in there", but, I do know I will be out here waiting to help him get through it.
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Are You There Denial? It's Me, Kate.

9/25/2014

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Well, it's been one week. Have you rushed out to get the iPhone 6? Were you standing in line so you could, as my husband likes to put it, be the first to "stick your head in the oven because everyone else does"? I was not standing in line, even though I wanted to be....even though my contract was up over 8 months ago....even though I am more than ready for an upgrade, but, with a husband like that, I couldn't be the first to put my head in the oven, because I hate to prove my husband right. In fact, AWEnestly, I love to prove him wrong. 

So, here I sit, blogging on my iPhone 4s dinosaur, trying to act like it's no biggie that it takes 90 seconds for Facebook to open up, or that my battery lasts approximately 45 minutes before I have to run to an outlet somewhere, trying to act like I don't care what "everyone else is doing". Just an FYI, I'm secretly dying to be like all the other people out there baking their head, impatiently waiting to stick my head right alongside their head in the iPhone 6 oven, assuming the oven is big enough and the temperature is set to low. And I don't even care if the new, problematic iOS8 keeps me from making a call on my "phone" or if I keep my new iPhone 6 in my pocket too long and it bends like a pretzel, it's still an iPhone, right?

If I'm AWEnest, part of my love affair with Steve Jobs and all things Apple is indeed, because "everyone's doing it", but, I truly do love and bow to all things "i" because for someone who is as technologically savvy as the Anti-Steve Jobs, "i" devices are simple and easy. I love my iPhone, iPad and I just recently started a romance with my MacBook Air. So as much as I have a love-hate relationship with my antiquated iPhone 4s, I still love it when my old dinosaur outsmarts Dan's Samsung. "Oh yes, it's quite easy for me to upload this video of our dog chasing his tail to Vine. Your Samsung can't do that?", I ask innocently while gloating inside.

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Like any good mother, I want my kids to put their heads in the oven with me so they can be on my side, not Dad's side. (The oven would be on very, very low and everyone would have their heads wrapped in oven mitts). This is why Kyle has an iPhone, Emma has an iPad Mini, Ryan has an iPod Touch and just last month, when Ryan turned 13, he became an official put your head in the oven, iPhone user. Well, maybe "user" isn't the correct word, more like an iPhone "owner", or iPhone "shelf decorator" (that's two words), since Ryan's iPhone has seen little to no use, besides that first day when I forced his head into the oven with mine.

As parents, it is our job to lead our children safely into the age of technology, making them choose the technological path that is right for them without trying to sway them too much to "our side". This is true for most things in the parenting department. Whether it's smart phones, religion, college selection or dating prospects, we parents are suppose to guide, not choose. For example, the main character in the book, "Are You There God? It's Me, Margaret." , Margaret is trying to figure out which religion she belongs to since her mother's family is Christian and her father's family is Jewish. With both families trying to convince Margaret where she belongs, trying to pull her to their "side", Margaret turns to God while trying to figure out her own choices and not letting family influence her. 

Clearly, Dan believes I am trying to force Ryan into believing in the Apple Gods which is why it made perfect sense that I would jump on the iPhone 5c as the ideal 13th birthday gift for Ryan. However, if I'm being AWEnest, it wasn't so much my belief in Steve Jobs that caused me to push Ryan's head in the oven with mine as much as it was my desire to have Ryan "be like everyone else'. It seems that just when I think I have removed Denial from my Favorites on my iPhone, I find myself calling her again and again, "Are you there Denial? It's me, Kate."

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Unfortunately, no matter how many iPhone upgrades I get, how many iOS operating systems I download, or how many factory resets I do, Denial always remain somewhere in the vastness of the iCloud, always at my disposal, waiting for my call. Regardless of how far down on my Favorites Denial goes, no matter how many times I have deleted her contact information, thanks to the Cloud, Denial is always there, ready to answer my call when I get caught up in the "everyone is doing it" mindset that so often does not apply to my son.

Denial assured me that with this new iPhone, Ryan would become more social. After all, it's easier to socialize via texts, tweets, and posts. Yet Ryan's iPhone has remained on his dresser for most of a month, with Siri begging for something to do. The iPod Touch, is still Ryan's go to, the iPhone, which "every kid" would love to have, sits on his dresser collecting dust. It didn't help that the original iPhone 5c we bought Ryan had a glitch and it deleted all of Ryan's overpriced data in 48 hours and put the fear of God and Verizon Overage Charges in my boy's psyche, but, mostly, I believe the reason Ryan's iPhone has become a dust collector is because Ryan is more like his dad, not quite ready to stick his head in the oven just because everyone else is doing it, or because good old mom had Siri ring up Denial for me....again.

Needless to say, when you aren't sure how the oven works, or how other people hanging out in the oven with you may respond to your new found place in the oven, it's easy to understand the fear of being burnt. Taking social risks for Ryan, whether it's in the school lunchroom or via a text in the privacy and safety of his bedroom, is scary. Ryan wants his response to be cool, to be "right", to be perfect. Rather than risk getting burnt, much to my dismay, Ryan has decided to keep the oven off and now it's Dan's turn to gloat.

I know it makes perfect sense that I want Ryan to text, tweet, post, and snap like all the other kids his age. And even when Ryan's words, "you know I'm not a real social guy" rang in my head at the Verizon store, I believed in my heart, that the magic of Apple would change all of that, or at the very least, I believed being social on social media, might come more easily for Ryan than being social face to face. Denial tweeted that she believed it too, #letsgetsocial, so of course I proudly retweeted it, right from Ryan's new, white iPhone 5c (that is costing us $50 a month to collect dust).

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When I either intentionally call or butt dial Denial, Denial usually steers me in the wrong direction, because Denial tends to see the world more through my eyes rather than through Ryan's eyes. This time though, I believe that the joy Ryan felt when he opened his new iPhone is truly how he feels in his heart and on his birthday, in that moment, there was no denying Ryan's joy when he opened that iPhone. Denial may have caused me to turn the oven on a little too soon, but, I think in time, Ryan may actually love the oven (sorry Dad) and in time he may just retweet Denial's #letsgetsocial. Just like so many developmental milestones with Ryan, all things eventually come to him, it just takes a little longer for him to catch on to the notion that "everyone is doing it" whether that's walking, talking, texting or tweeting. 

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Will Ryan become a social media extraordinaire or the next YouTube sensation? Will Ryan's iPhoto be as filled with selfies and photos of friends as his big brother Kyle or his aging, still trying to be cool, mother? I doubt it, but, I do believe in time, Ryan will feel comfortable texting and posting his latest Minecraft zombie kill on Instagram. Ryan once told me being social is difficult because "it's hard to think fast", and the magic of Apple, Samsung, and Droid is that no matter which oven you decide to stick your head into, you can ignore, delete, silence or have Siri respond for you, after you have had time to "think" and formulate a response. Maybe it's still Denial talking, but, I believe socializing on social media will open, or at the very least crack, the oven door a little wider in all things social for Ryan, regardless of which oven he chooses.

Just like Margaret had to figure out who she was on her own regardless of the influences of family, peers, and the pressure of growing up, Ryan will find his place regardless of the influence of his dad, his mom, or his mom's BFF, Denial. Whether it's smart phones, religion, school socials, proms, or career choices, Ryan will need our guidance, but, ultimately Ryan will choose. Perhaps Ryan will stick his head in the "everybody's doing it" oven with me, the non-conformist oven with his father, or his very own, yet to be determined, oven. 

Regardless of which oven Ryan chooses, he will figure it out his way, in his own time. I just hope that whatever path Ryan embarks upon, he will take loads of photos that he can share with me in iPhoto, send me tons of iMessages to fill me in on what he's up to, and FaceTime me regularly to let me know where he is heading next, so that I can proudly tweet, text, and post from my latest, greatest iPhone, assuming, that I can get my head out of the oven in order to do so.

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iPhone, Samsung, Droid, it doesn't matter, selfies with mom just aren't cool.
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"Mommy, Kiss It and Make It Better"

9/12/2014

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As a mother, after your baby is born and you get over the whole, "OMG I am responsible for taking care of this squirming, squishy, helpless creature", whose only form of communicating his or her needs and wants is via a banshee type cry, it doesn't take long for your maternal instincts to kick in and you quickly learn how to decipher one banshee wail from the next. It's funny how the cries of a child vary from situation to situation and how quickly we moms figure out which cry you need to run to with a bucket, a band aid, or a kiss.

There is the "Feed me now I don't care if it's 3AM cry". The "How many more episodes of Friends are you going to watch before you change my big, puffy, soggy diaper?" cry. The "I'm never going to nap, no matter how long you hold out so just get in here and pick me up because you know you are going to pick me up anyway" cry. And of course, a personal favorite of mine, the "Oops Mommy forgot the baby's head sticks out farther than Mommy's elbow and when Mommy walks through the door she whacks baby's head on the door frame." cry. Even as our babies get bigger and are able to communicate with more than a cry, a wail or a scream, the cry is still what gets our attention. The cry calls moms to action. And as crying experts, regardless of the age of our child, we moms are still able to differentiate the cry of fear, hurt, heartache, stress, and anger.

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A "big brother who just ran over little sister's favorite, can't live without it, Cinderella doll with his Tonka truck" cry, is very discernible from "brother just pinched little sister because he likes to watch her get what she has coming to her" cry. A "someone finished the Pringles and left the empty container in the pantry" cry is much different than an "I got tearless, burnless shampoo (doesn't exist) in my eye" cry. 

Yes, we moms know the wail of a skinned knee, the crocodile tears of a broken heart, the stifled, hiding the face in a couch pillow sob of a Disney movie death (AWEnestly, someone always dies and 9 chances out of 10, it's the mother), and the terrified scream of a nightmare. We know when mommy's kiss will make it all better or when more extreme measures are necessary. Maybe it comes with years of training our ear to hear a cry that signals a real emergency so we don't have to pause the DVR during the season finale of Downton Abbey, or maybe it's just that moms have a direct line from our child's heart to our own. We feel their needs, so we know when and how to respond. Whatever the reason, a child's cry is mom's signal that help is wanted or needed, and so, we act. 

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But what if there are no cries, no wails, no screams, or no tears? What if a child suffers quietly, alone and in silence? How then does a mother discern the kind of pain, the degree of pain and the right treatment of the pain if she is completely unaware the pain even exists? How do you kiss it and make it better when "it" is completely unknown?

When Ryan was little, I use to worry that he had some freakishly high threshold of pain. I'd put him in the tubby in what felt like "just right" tubby water only to discover he was firetruck red from the waist down with not so much as a peep out of him. Then as Ryan got older, I believed his threshold for pain was so low that I wondered if he had some type of neurological problem. A tiny little bump to his finger or toe would elicit blood curdling screams of what he believed was certain impending amputation. Then once I knew, once we heard The A Word, than I realized that Ryan's pain level may vary somewhat due to his overtaxed sensory system, but, for the most part, Ryan's level of pain isn't much different than yours or mine, but, how Ryan expresses his pain, or doesn't express his pain, is what varies from you or me.

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Just this week I found out that for Ryan, some boo boos are too ouchy to cry about.  Some pain is too difficult to share, so the hurt is hidden, buried away, and the pain does not illicit a cry, a scream or a tear. Some hurts remain hidden behind a veil of silence until one day, a simple English assignment pulls the veil away.

Ryan had to do a writing assignment about himself. Some of his major accomplishments, things he enjoys, as well as writing about "some of the worst things that have happened to you". It was in this category where Ryan's cry was finally heard. He wrote, "4th grade" then "massive humiliations that I don't want to mention here". What? Fourth grade? There were no cries of help, no screams of injustices, no tears of pain. How did I, his mother, his protector, his translator of cries, not know Ryan had suffered "massive humiliations"?

After a bit of prompting, Ryan admitted that a boy in his grade had been bullying him for years. I felt like someone kicked me in the stomach. I truly thought I might throw up directly on his writing assignment, which would have lead to one more example for my poor boy to put in the category, "some of the worst things that have ever happened to you". I had my suspicions about this boy, in my gut I knew something was going on, but, Ryan did not cry, he did not scream, he did not wail so how could I interpret silence? I was terrified, that somehow, when Ryan needed me most, our connection, the line from his heart to mine, had been disrupted.

As I tried to go back and recall signs of what I had been missing, I wondered, was it my good old bullying friend Denial whispering in my ear, "He's fine, there would be signs if he was being bullied." the reason that I didn't hear Ryan's cries? What parent wants to believe their child is being harassed, taunted and made to feel badly about himself? Even with Denial's influence, I followed my gut and I still warned Ryan's teachers, his principal and his guidance counselor to be on alert for this bully. They watched out for problems, they listened for cries, they looked for tears, yet they were as blinded by bullying as I was. Ryan saw it, he heard it and what's worse, he felt it, yet, Ryan never cried. He never told Mommy to kiss it and make it better. So I didn't.

When I asked Ryan why he didn't tell me, or tell one of his teachers, he said, "I couldn't find my words". Along with my dinner contents, the blood from my heart spilled over onto Ryan's writing assignment. Ryan's words, along with his pain, were buried deep inside his AWEsome brain and he wasn't sure how to get the words out. Along with processing his pain differently, autism causes Ryan to process his feelings and his language differently. It's hard for him to put words to feelings, so instead of trying, instead of crying, he suffered in silence. A silence that even Mommy's kiss couldn't break through.

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I have cried more tears than I can count this week and have gone through a range of emotions...heartache, anger, guilt, shame....feelings that all stem back to, Mommy failed to protect him and could not kiss it and make it better. As easy as it would be to blame myself, blame the school, and even blame Ryan for not telling, I blame no one other than the bully, with a little bit of blame directed toward the bully's parents.

Bullies are sneaky. Bullies are manipulative. Bullies prey on those they perceive as weak. Bullies are nice to their victims in front of school personnel, in front of students who will "tell" and even in front of the victim"s mother. The bully hides in the shadows where no one is looking, where no one can hear the cries of his victims.

The irony for you bully, is that my son is not weak. Despite your name calling, your teasing, your harassment, my son has thrived. My son has reached goals you could only ever dream of reaching. My son has more accomplishments under his belt than mean names that you shamelessly carry under yours. You did not win bully. You will never win.

In the middle of my angst this week, one of my BFF's said, "One day (insert bully's name here) will be washing Ryan's Mercedes". In that moment, it felt good to picture this bully washing the rims of Ryan's shiny new Benz, while Ryan sat inside looking down at the boy who no longer posed any kind of threat, feeling like justice had finally been served. The moment of gleeful retribution quickly passed though because Ryan does not have a Mercedes today. 

Today, Ryan is not worrying about who will wash his imaginary car or what he will be when he grows up or what prison the bully may wind up in, Ryan just wants to go to school, to learn about the metric system and algebraic equations, and to continue singing his heart out in a safe place free of bullies. In a place where Ryan feels valued, a place where Ryan feels pride, a place where Ryan feels special, a place where Ryan feels protected.

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With the range of emotions that hit you as a mother when they place that squishy, funny looking creature on your chest seconds after they enter the world, the strongest of these emotions is the instinct to protect. Regardless of how smooshy and wrinkly that new baby looks, and how very briefly you have known him, you know that you would do anything to protect him, but, sometimes we can't always be there to kiss it and make it better. Sometimes we can't be there to kiss the scraped knee at recess, to hug a broken heart sitting alone in a college dorm room, or to call out the bully in the classroom, and to a mother, this inability to protect is anguishing. The pain of your silently suffering child makes the pain of childbirth feel as mild as a scraped knee. It is when we can't kiss it and make it better that we mother's need an epidural to ease our pain.

Yes, I will probably always suffer from the guilt of not hearing my son's silent cries, for not listening more with my heart than with me ears. I will wonder if autism stood in Ryan's way, if autism made it hard for Ryan to "find his words" and to find his cry. As Ryan continues to grow and mature, I may not always be able to kiss it and make it better, that is the sad reality for all parents. However, just like a newborn baby knows that even if you don't hear their cries at first, eventually you will be there to pick them up, to soothe them, to hold them, and to kiss it and make it better. 

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I take comfort in knowing that no matter what was happening in the classroom, on the playground and in the hallways, Ryan knew that when he got home, when he made it safely to my arms, then, at that time, he felt safe, he felt happy, he felt loved. Ryan knew that even if I wasn't "there", eventually, I would be, and Mommy would kiss it and make it better, without him ever needing to utter a word. 

Autism may sometimes disrupt the line of communication between Ryan and me, making it harder for me to hear him, but, that disruption doesn't make our line, our connection, or the message Ryan is conveying any weaker. Ryan's difficulty with expressing himself just makes me appreciate the words, the cries and even the banshee wails all the more because I know how hard he worked to"find his words" which makes the line from my heart to his, even stronger.

In this instance, although my heart may ache and lead me to believe that my connection with Ryan was weak, and that I failed him, my brain knows our connection was strong and even though I didn't "hear" him, the love, support, and encouragement Ryan felt at home, helped him prevail. The only thing weak here, is the bully and his meager, failed attempt to keep my son from succeeding. 

Ryan is not weak, Ryan is strong. Strong enough to know that even though this bully's teasing and words may have caused Ryan "massive humiliations", when he was in 4th grade, and even though the bully still makes Ryan feel "uncomfortable" today, Ryan now believes in himself, not in the empty words of a bully. I believe going forward, it will be Ryan who will find his words and it will be the bully that will be at a loss for words, for names, for taunts and the bully will find himself cast out of the shadows. And we all know, that without the shadows, the bully's words, his actions, and sometimes even the bully himself, amount to nothing.

As for my friend's glimpse into Ryan's Mercedes driving future, and the bully's soap and bucket car washing future, well, all I can say is, I hope Ryan picks a white or a black Mercedes because those two colors are very, very, difficult to clean and Ryan is incredibly meticulous.  

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Protecting him from bees, bugs and bullies, but, mostly giving him the confidence to protect himself.
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So Worth the Wait

8/15/2014

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We just returned from four days at the beach. The beach....it's great to say the word "beach", type the word "beach" and think of the word "beach" and smile a real, genuine, feel it in your heart, smile. The word "beach" always makes me smile, however, for a few years, my smile went on a brief vacation to Siberia whenever The B Word was mentioned.

My smile didn't head north because I don't love the beach, oh no, I am, and always have been, a beach girl at heart...as long as it's not raining and the water is above 76 degrees and shark free. I have always loved the sand, the sun, and the waves, and believe me, I've got the wrinkles and sun damage from my carefree, SPF free days to prove it. However, once you have kids, days at the beach change. Carting kids and kids' beach essentials make the carefree beach days, not quite so carefree anymore. 

As young, carefree 20 something, I use to laugh at all the crap parents toted to the beach when I happily stepped onto the sand with a chair and a towel. Then I became one of them, sort of, in a way...not really. When you add a dab of autism to the sunscreen, swim diapers, shovels, pails, boogie boards, beach chairs and endless please keep them from whining, bribe them with anything regardless of the sugar content snacks, the once cool ocean breezes can feel as fiery as the gates of Hell.

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When Ryan was little, The B Word, was almost as bad as The F Word. The sun, the sand, the wind, the sticky sunscreen and the shrill, ear piercing sound of the lifeguard's whistle was more than my sensory overloaded boy could take. You would think as a mother I would feel so badly watching my son meltdown as quickly as his overpriced Ice Cream Man popsicle, that I would have scooped him up and taken him back to the safety of his temperature regulated, sand free, ocean breeze free beach house, but, I didn't. Remember how I said I LOVED the beach? Well, come the fiery gates of hell or storm surge high water, this beach girl was determined to make my son love the beach too.

Year after year, as we endured tears and whining, bribes and threats, and after exhausting each and every possible distraction that would not make the sand feel so sandy, the sun feel so sunny, and the wind feel so windy, I would think, "Next year, he will learn to love the beach. Next year". 

Yes, each and every year, as the car was packed up and the beach gear was dragged up from the bowels of the basement, with the remnants of sand and dried tears (both Ryan's and mine) covering the shovels, the pails and the boogie boards, I would silently pray, "Let this year be the year my little man finally gets what all this "down the shore" fuss is about. Amen.".

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For many years, my prayers went unanswered as I sat on my beach chair holding my sand covered boy in my lap as he burrowed his head into my chest and grinded sand into my second and third layer of skin in his attempt to protect himself from all things beachy. 

As I futilely attempted to remove each and every grain of sand from Ryan's stressed out body, I would see those "other mothers" and I can AWEnestly say, I kind of, sort of, really hated them. Those "other mothers" who sat in their beach chairs happily watching their children frolic in the surf and bury their siblings neck deep in the sand. 

Those "other mothers", whom I believed took for granted the perfect beach day. The mothers who stood along the shore, camcorder in hand proudly capturing such beautiful moments so that in their golden years they could reminisce these perfect child rearing memories in the years to come. As I stood by, tears streaking my sand covered face, silently and selfishly hoping a giant sand sinkhole would swallow those "other mothers" and their perfectly recorded memories up. Yep, I hated them.

Ryan oblivious to my tears, because he was literally blinded by his own sunscreen infused tears, would rub his eyes, which of course only made his wails of "burn, burn, burn" grow louder, didn't even know anyone else existed on the beach, let alone his feeling sorry for herself, trying to suck it up, mother. Ryan was too busy trying desperately to survive the onslaught of sensory stimuli, while I shot daggers at mothers I didn't even know and Ryan's big brother Kyle jumped in the waves....alone, hoping one day his little brother would join him. 

Little did I know, that my time, as a mom happily enjoying the beach with all her children, and Kyle's time (having a brother body surf the waves) was coming, we just had to be patient and wait. I hate waiting.

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Being the beach lover that I am, as much as I wanted Ryan to frolic in the ocean like a dolphin and scurry across the sand like a crab, in terms of sea life, my son was more like an oyster than a dolphin or crab. 

Like an oyster, Ryan had a hard to penetrate shell that he used to protect himself from things unfamiliar trying to enter his safe, closed off haven. Over the years, Ryan has slowly allowed unfamiliar and foreign stimuli that are horribly irritating to him, inside his protective shell. And just like an oyster's natural reaction to a foreign substance entering it's shell, is to cover up the irritant to protect itself, Ryan too tried to protect himself by closing up to all things beachy. 

However, just like a pearl takes years and years to develop inside the shell of an oyster, over time, that once irritant that broke through Ryan's shell, has no longer become something to fear, but, something to behold. In an attempt to protect himself from outside stimuli, Ryan was creating something beautiful within the walls of his shell, something that I couldn't see from the outside. The beauty that lied within the shell needed time to grow and develop so that it could turn into something so exquisite and so rare, that was absolutely worth the wait. 

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Finally this year, my oyster revealed the beautiful pearl that had been forming within. Yes, he whined about how long we were on the beach, and yes, the water wasn't his desired temperature, and yes there were too many "annoying people" around, but, this year, I sat on my beach chair like all the "other mothers" and smiled as I watched all my kids enjoying the beach. Unlike those "other mothers" though, I recognized the rareness of the moment and although we captured it with digital media, those moments are forever ingrained in my heart. Moments that were definitely worth the wait. 

Turns out, I wasn't the only mom harvesting oysters on this particular beach trip. Right down the beach was a group of mothers, who, chances are, at one time or another, hated all those happy smiling "other mothers" with their beach loving neurotypical kids like I did.  It just so happened that the same week we were at the beach, so was Surfers Healing http://www.surfershealing.org/, an organization that provides surfing opportunities for kids and adults living with autism. 

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I watched as these kids who fight so hard to keep anything from seeping in between the cracks of their shell, open up just enough to experience something AWEsome. Many kids went into the waves closed up tightly and protecting themselves because they were afraid and unsure, but, they all came out shining beautifully to the applause and cheers of an entire beach. Yes, that day, I watched the shoreline shimmer with beautiful pearls who found pride and joy in the ocean waves while standing up on a surf board. While their parents looked on at the precious and rare gem that outshone any other.

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Ryan may never love the beach like his mother, which will probably decrease the signs of aging and his risk for skin cancer, but, for this beach girl, there was just something different about this beach trip. There was a peacefulness about what is and not so much concern for what could be. Maybe when I finally stopped worrying so much about my little boy's protective shell, I could finally see the pearl that had been forming and growing inside all those years. I just had to sit back and wait. 

And just like a string of cultured pearls that takes a single grain of sand an entire decade to form, only time enables the exquisiteness of such beauty to shine forth and be appreciated in the precise color, shape and size it was destined to be.

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So worth the wait.
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The "i" in Team

6/5/2014

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Tick tock, tick tock....there are only a mere 24 hours until the school year ends, 24 hours until this mom can breath a sigh of relief that Ryan not only survived his first year of middle school, but, that he kicked butt and took names. Actually, he really didn't "take names" because names are not his strong suit, and where in the world would he "take" a name anyway? And even though I think Ryan "kicked butt" he would tell you he most certainly did not kick butt because that would be rude, violent, against the rules and a lie. So, I guess I will just say that with only hours left of 6th grade, Ryan's school year was AWEsome! Hooray!

There will be plenty of "I told you so's", from the likes of my husband, Ryan's therapists, my friends, his brother, and his former teachers. People ready to gloat that all my fingernail chewing, all my sleepless nights, all my How to Survive Middle School with an ASD Survival Guides that I created, were all for not. Gloat away folks, because no one could be happier about being wrong than me. I just wish all these gloaters would share their crystal balls with me and spare me all the anxiety that will surely roll around in August once again. 

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When Ryan reluctantly walked out the doors of elementary school last year at this time, anxious for what was yet to come and heartbroken for what was left behind, my biggest worry wasn't school yard bullies, getting him up at 6:15AM or the shape of the school pizza (although those were all very genuine and legit concerns), what kept me up at night on the "what if" roller coaster that is my brain, was the concern of what if Ryan, my one man, man, can't survive being placed on a middle school team. I don't meant the basketball team, the volleyball team or the debate team, I mean an academic team that consisted of five teachers for core subjects and ten other teachers for various specials. Ryan was use to one or two teachers that he had to get to know and who had to get to know him. I was AWEnestly convinced that rather than be placed on the 6R Academic Team, Ryan would have chosen to take his chances of a spike to the face on the middle school volleyball team. The pain of a volleyball spike would diminish much quicker than enduring a different teacher for nine periods each day. 

I know it's probably been a while since you have done middle school math (unless of course you have a middle schooler and unlike me, you can actually help your kids with math past the second grade), so I am going toss out two equations for you. Here goes:

9 class periods+9 teachers+9 varying teaching styles+9 sets of rules=1 anxious boy

1 anxious boy=1 worried, fretting, nutsy mom

I always hated math.

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Ryan isn't much of a "team" kind of guy. Being part of a team, means getting to know your teammates, understanding everyone's role on the team, and being able to interpret facial expressions, body language, and social cues that often go hand in hand with being part of a team. Autism makes all those things hard for Ryan, not impossible, but, difficult enough that he would rather stick with his one man show. Ryan is a solo sport kind of guy, he prefers having to only look out for himself and being responsible for "I" not "we". The saying goes, "There is no i in team", but, Ryan most assuredly would beg to differ (actually he probably wouldn't since there literally is no letter "i" in the word team, but, work with me here folks, it's been a long school year).

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Throughout the school year, I never once heard Ryan say "we" or "team", but, he frequently and proudly used the word "I". "I made the honor roll!"...."I got a 100% on my test!"...."I handled it on my own."...."I passed."...."I understand the material perfectly". "I, I, I", not "we, we, we" and Ryan's right, he did do all those things, but, just like a pitcher may run off the mound screaming, "I threw a no hitter!", without his team's flawless defense, without his team's support, a no hitter would have been impossible. A quarterback who is patting himself on the back for having such a successful season may say, "I hold the NFL record for most completed passes." which may be true, however, without his defensive line protecting him and he receivers catching the ball, that quarterback would not have thrown a single completion.  

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For Ryan, whose fight or flight is so heightened, taking care of "I" makes recognizing the importance of "we" challenging. Autism makes the notion of even an academic team, seem full of unforeseen, unexpected, danger and peril. An academic team, may seem almost as dangerous as a rope team climbing Mt. Everest. The English teacher may use a stopper knot to keep her team together and safe, while the Science teacher may prefer to use prusiks on the rope, a completely different way of reaching their goal safely. These different strategies all work, but, for a child who prefers "same" getting to know all those differences and understanding them, is like free climbing Mt. Everest without a Sherpa.

A mountain climber who screams from the top of the Earth, "I climbed Mt. Everest", would have never made it to the summit without being tethered to a team, a team whose soul job is to keep each member safe, while they reach the summit. Being part of a climbing team, the team members understand the whole "you go, I go" motto, even though none of them want "to go". They understand that being tied to that team helps each climber, regardless of the differences in ability and stamina, reach their goal. Often the distance of the rope is shortened for the climber who occasionally stumbles and struggles to ascend, the climber who may struggle to see the crevasse buried beneath the snow. The members of a good rope team, know when and how to make the adjustments and keep a struggling climber close, ready to self-arrest and do whatever it takes to make each member of the team reach the summit safely...even the climber who struggles. No mountain climber can ever say "I" without the "we" of his rope team that guided him through hazardous and unpredictable terrain. 
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The academic team that Ryan was fortunate enough to tether himself to for his first year of middle school, kept him close and kept him safe as he found his way over the hills and peaks of the strange terrain of metaphors and figurative language, as he eased himself over algebraic methods, and happily explored the elements of the Earth's crust, all while making new discoveries on the people, climate, and culture of French Guiana. This amazing team, knew when Ryan felt safe enough, when he became more confident in his abilities and they extended the distance between themselves and him on the rope. A distance great enough to make him forget the "we" in team and happily declare, "'I' made it to the top!".

With only hours left until 6th grade comes to an end, I promise you Ryan will descend the bus steps on that last day, with tears in his eyes since ending something familiar and beginning something new is both difficult and heartbreaking for my sensitive son. With all his successes, all his accomplishments, Ryan could scream from the rooftops,"I did it, I made the Honor Roll all four marking periods and I am a seventh grader!", but, he won't because bragging isn't his thing and because climbing on the roof, untethered is as dangerous as free climbing Mt. Everest. This declaration may not be shouted from the rooftops, and chances are high that he won't even utter a single word about it, but, as his forever grateful, lifetime Sherpa, no one knows Ryan better than me, and I promise you 6R Team, he feels it, he knows it, and he believes it, all because he was tied tightly to an amazing team. 

Thank you 6R Team, for pulling my son, for pushing him, for securing him, for reaching him, for teaching him, and for believing, "different, not less".  Mostly, this worried, tired, about to open a bottle of wine mom, thanks this team of AWEsome teachers for not allowing my son to fall through a crack or a crevasse by providing him with just the right amount of rope that gave him the strength and the confidence, to reach the top and to proudly find the "i" in team.
"I cannot emphasize enough the importance of a good teacher."
    -Temple Grandin

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Where Ryan spent hours putting the "i" in team.
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The Idiocy of Idioms

4/17/2014

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One of my BFF's is Indian. She is gorgeous, fun, YOUNG and has more energy than anyone I have ever known. Come to think of it, why am I friends with her anyway? She grew up a military brat, but, spent most of her childhood in India speaking both Hindi and English...English with a British flair (Great Britain ruled India for decades, a little fact this dumb American never knew until she became besties with someone who actually lived outside of PA). Then my girlfriend met this AWEsome Indian doctor and found herself in the middle of Garrison, North Dakota for a few years only then to later wind up in South Central PA. It didn't take poor, lost "Dorothy" to realize she wasn't "in Delhi anymore". 

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The trade off for following a handsome, loving doctor to the middle of nowhere, left my poor Dorothy friend shoe shopping online, learning a new culture and learning all the weirdness that comes with adapting to the English language. The English language that was not taught in a classroom, or in her native India with a great deal of British influence, but, in the good old USA. Sure my girlfriend spoke English, she understood English and she could read English, but, until you are thrown into the English language with no rule books on the metaphors, idioms, inconsistent phonetics, and the slang haphazardly tossed about, my bestie "Dorothy" probably wanted to click her ruby slippers and bust out of Oz (most certainly out of cold, snowy North Dakota winters) and head back to Delhi, taking her fabulous husband in her basket with her.

For someone like me, who grew up speaking English and only English, I take for granted the ease of the English language, but, for some people, English isn't that easy. A study was conducted by a language processing company called Idibon to try and determine not which languages are "hard" to learn (Arabic is in the top five), but, which languages are "weird". The Idibon study looked into which languages used the greatest number of unusual features that are not used in many other languages. I am proud (?) to report that English ranked number 33 out of 239 languages in the "weirdness index". I can't decide if that is a good number or bad? I guess the fact that our language made the "weirdness list" should ease the minds of the non-native speakers. Now when they make grammatical, phonetical and pronunciation faux pas, they can acknowledge that they are not in fact weird, but, it is the English language who is to blame.

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I've often wondered if Ryan's struggle with pragmatic speech (language used to communicate and socialize) makes him feel like he has entered a foreign country, where he is familiar with the language....he speaks it, reads it, interprets it, and for the most part, understands it, until the English language 'weirdness factor" comes into play. My boy, and many kids with an ASD, are so literal that figurative language, metaphors, slang, cliches, etc., get lost on them, which ironically makes them feel weird, even though we now have legitimate proof that it is the English language that is weird. And as far as Ryan is concerned, there is nothing weirder about our language than the use of idioms. So, if you ask Ryan a question and he doesn't respond right away, do not ask him, "if the cat's got his tongue" because I assure you, not only will he think you are "as dumb as a rock", but, you will most certainly be shown his tongue in an attempt to prove to you that the cat in fact did not take his tongue. You will then be told, in a voice full of shock and disdain that you could AWEnestly be so stupid, that since a cat has no hands, taking a human's tongue is next to impossible

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The English language can be very difficult, "weird" and illogical not only for those who did not grow up speaking the language, but, for many kids with an Autism Spectrum Disorder who interpret all the words they hear in a very literal, very concrete, way. It's funny, because more often than not, I believe that the way Ryan sees and hears the world makes much more sense than the way I do. For instance, on what planet does it make sense that a heavy downpour should be equated to "raining cats and dogs"? Why not horses and cows? After all, if you are trying to talk about the large amount of WATER falling from the sky, aren't horses and cows bigger? Wouldn't that have a more dramatic effect and isn't that what we are trying to do? It makes perfect, logical sense to say, "it's raining heavily today" or "there is a lot of water coming from the clouds today" or more precisely, "I guess the water droplets in the clouds grew too heavy today and gravity forced raindrops to fall from the sky" since that is EXACTLY what is happening. Thank goodness there are no dogs and cats or horses and cows falling from the sky, what in the world would an umbrella cost in order to protect oneself from falling felines or bovines?

Just like my bestie from India, has slowly learned the various cliches, idioms, metaphors and slang abundant in our weird English language, she still sometimes gets confused and AWEnestly, it is so funny to hear her strong Indian accent saying something so weirdly English (Come on, she's gorgeous, fun, and young, she has to have something I can abuse her about). Just like a non-native English speaker, Ryan can learn and memorize idioms, metaphors and slang, but, having such "weirdness" become part of his English repertoire probably will not happen. Memorizing such English "weirdness" and sort of understanding idioms and metaphors, doesn't necessarily mean they make logical sense to Ryan, and my boy is all about being logical. Being logical, being literal, helps Ryan makes sense of a confusing world. As his mother, who knows him better than anyone, you would think by now I would understand this, but, sometimes I take for granted that some of my weird English phrases make absolutely no sense to him.
 
A perfect example happened on one of the 72 snow days we had this winter (it sure felt like 72 snow days). It was one of those days where it was icy and the roads were hazardous just in time for the morning commute and the weather men predicted a worse scenario than what actually occurred. By noon, the snow and ice had melted and the sun was shining. As Ryan and I headed out to the grocery store he said, "I can't believe we didn't have school today." "Tell me about it.", I replied. Without missing a beat Ryan said, "I just did tell you about it. Didn't you hear me? Maybe you are going deaf." Yes, literally, Ryan did just "tell me about it", but, figuratively, he wasn't going to "tell me about it" again. I smiled the entire way to the grocery store, but, still wondered how much weird English language Ryan misses in social conversations. It makes perfect sense that Ryan chooses to stay quiet, to avoid social settings when the words he is trying to understand are so freaking weird.
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Ryan and his speech therapist worked on idioms once upon a time and during that time, I bought Ryan this Dictionary of Idioms book thinking Ryan could memorize them and not feel weird about our weird language. Thinking that if Ryan just read the book, memorized some of the more common idioms, he might not feel like his peers are speaking a foreign language. Ryan never cracked the cover because AWEnestly, he could care less about idioms. Idioms don't make sense, to a literal thinker. Idioms are illogical and so why would Ryan waste "a penny for his thoughts" on something so ridiculous. Ryan has learned to recognize some idioms, but, chances are, no matter how much I am rushing him in the morning, screaming for him to put his shoes on and brush his teeth, Ryan will never tell me to "hold my horses" because clearly I don't have any horses and even if I did, a horse would be much too big for me to "hold".

As Ryan's mom, I try to speak in a way Ryan understands, but, since idioms, metaphors, and slang have been a part of my repertoire for so long, it's "hard to teach an old dog new tricks". So on particularly tough days, days when autism has a stronger hold on my boy's brain and days when my 40 something hormones have a stronger hold on my brain, and I'm trying to get through to Ryan by telling him he's "making a mountain out of a mole hill" and that by yelling at me is only "adding fuel to the fire" and that if he keeps "getting under my skin", I'm going to "hit the roof" and he most assuredly is going to "be in the doghouse", would do nothing to resolve the situation. In fact, Ryan would look at me like I was speaking Hindi or some other language he does not understand. My dear old friend, Clueless would be sitting on the side of Ryan's bed "in stitches" at my stupidity. 
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If Ryan cared enough to interpret my idiotic idioms, he would assure me that he cannot make a mountain out of a molehill because he does not have heavy equipment machines at his disposal and even if he did, he is not allowed to operate them. Ryan would also point out to me that the gas cans are in the garage and that on the side of the gas cans it reads, "Danger Extremely flammable" so even if there were a fire in his bedroom, Ryan would never add fuel to the fire, instead he would flee the house and dial 911 as he has been instructed to do. Ryan would logically point out that he is entirely too big to "get under my skin" and that getting under anyone's skin would require cutting their skin and making them bleed and since Ryan is not a fan of blood, he would choose to stay outside of my skin rather than under it. After discussing the dangers of climbing on top of the roof in order to "hit the roof" Ryan would then remind me that dog houses are for dogs, not people, and that our dog doesn't even have a doghouse so obviously there is no way Ryan could be "in the doghouse". See, now who makes more sense, Ryan or me? 

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Concrete, literal thinkers have no time or room in their black and white brain for idioms and AWEnestly, who can blame them? When you stop and think about them literally, they make no more sense than someone speaking a foreign language you have never heard before. Clearly, the guy at Game Stop will not take my arm and my leg instead of cold hard cash for the latest Mario game even though I have assured Ryan, that the game "costs an arm and a leg". And although you may have reached your limit with all the crap that happened in one day, and you can't take one more bad thing happening, a piece of straw will not break a camel's back. Camel's are very strong animals, as are their backs, which is evidenced by people riding on camel's backs across the Sahara Desert. And even though you spend hundreds of dollars on your new dress, shoes, and accessories in order to look hawt at your upcoming class reunion for that old flame of yours, no matter how much your shoes cost or how many lines that Botox erased, that old boyfriend will not "eat his heart out", unless of course your high school boyfriend's name was Hannibal Lecter.

My bestie from India has been in this country for 12 years, ironically, Ryan has been in this world and this country (only) for 12 years too. My girlfriend and Ryan couldn't be more different socially. Her social circle and friends on Facebook are in the hundreds, Ryan's circle is in the single digits with no Facebook account, however, when it comes to understanding and interpreting the weirdness of the English language, they have both had their misunderstandings, confusions and funny moments. The English language may not be hard to learn, but, it can be weird in it's interpretations with all it's metaphors, slang, and idioms. Misunderstandings, misinterpretations and getting the wrong idea happens frequently which we now understand doesn't make the speaker "weird", just the language.
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Just like Ryan may look at you creepily if you tell him your going to "lose your shirt" at the casino, you may look at my Indian British influenced girlfriend creepily if after a day of shopping with her, she asks you to pop your "dickie". Regardless of how much money you may lose at the casino, you will not walk out of the casino shirtless and my friend who wants you to pop your "dickie" (which may sound horribly forward, after only one shopping date), does not want you to pull your pants down, all she wants you to do is open the "trunk" of your car where her shopping treasures are located. The weirdness of language can lead to weird, but, funny moments, that leave you feeling like "a fish out of water" or make you want to "bite your tongue".

When I hear my friend speaking Hindi, which is "all Greek to me", I recognize that getting Ryan to speak in idioms or metaphors is like asking him to speak a foreign language and that I'm "barking up the wrong tree", so I have stopped "beating a dead horse" and put the Dictionary of Idioms away. Ryan may not memorize idioms, metaphors and slang, in order to enhance his pragmatic speech, but, as with so many things in the world of autism, I have learned, that there is "more than one way to skin a cat" so, even though Ryan may be a "tough nut to crack", I keep in mind that "Rome was not built in a day" and when it comes to helping my son succeed, I will never, ever "throw in the towel". 

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Sometimes his "bark is worse than his bite", especially when he is as "mad as a wet hen", but, "make no bones about it", my boy loves like no other.
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Small Talk is BIG

3/27/2014

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For those of you who know me personally, you know I have been blessed (or cursed, depends on how long you have to sit next to me) with the "gift of gab". It's very rare, that my mouth isn't open and moving. Even as I sleep, my mouth hangs wide open, as I mumble and chat with the folks who are brave enough to enter my dreams. This gift of gab is not new, I'm pretty sure I came out of the womb talking. Teachers in elementary school gave me the nickname, "Chatty Kathy" (I'm a K, not a C), just like the very scary, Chucky's twin sister, 1960's Chatty Cathy doll that could "chat" (and possibly kill you in your sleep) when you pulled a string on her back. 

AWEnestly, look at that doll...is she pointing at me in a "I'm coming for you next?" kind of way (shudder)? That doll is so freaky and as a fourth grader had I known how offensive the nickname "Chatty Kathy" was, I would have put one of those creepy, possessed looking dolls under my teacher's bed with a toy knife in it's hand. Who needs a tack on teacher's chair, when a Chatty Cathy doll lies await under teacher's bed? Dan, who is not a small talker and who amazingly has not put a Chatty Cathy doll under our bed to scare me into silence, once told me that I could befriend and small talk with a fence post. As long as the fence post occasionally creaked to show some type of interest in what I was chatting about, I probably could befriend and chat with a fence post. A fence post isn't nearly as scary as Chatty Cathy.

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Ok, fine, my dirty little secret it out. I'm terrified of creepy looking dolls, and I'm a chatter box blessed with the gift of gab who can engage in small talk all day long with my blah, blah, blah, Chatty Cathy mouth... often at tongue straining speed. If any kind of alcohol or medication is added to my gift of gab, it's highly recommended that anyone within 50 yards of me, grab some ear plugs and an interpreter in order to protect your hearing and decipher what the he** I am saying. Even during my college days, I never "experimented" with stimulants because I felt certain that between my already hyper, overstimulated personality and my gift of gab, someone would have surely tossed me over a balcony. I promise you, had I been given an opportunity to score some of Walter White's highly addictive blue meth from the series Breaking Bad, regardless of it's 99% purity, I still would have never become a meth head junkie. Walter would have shot or poisoned me within three minutes of my first meth buzz. I would have never stood a chance of becoming addicted. 

Good thing we have no balconies at our home and it's probably in my best interest to never have my science loving, money loving Ryan ever meet up with Walter White because Ryan does not believe my gift of gab is a gift at all. In fact, to Ryan, most of the time I am just noise...noise that makes his "brain hurt". Ryan loves me to the sun and back, but, as far as my small talk gift of gab, well, quite frankly, Ryan would happily have me re-gift my gab and Dan would probably help Ryan wrap it. Re-gifting my gab is a much better scenario than having those two inquire with Walt how big of a barrel they need for me.
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Ryan loves small talk about as much as Walter White loves the DEA. Autism, or Autism Spectrum Disorder (ASD) is a social communication disorder. Many people with an ASD, have difficulties with socialization and communication and Ryan is no exception. Small talk involves both communication skills and social skills and Ryan struggles with both. Ryan is also a perfectionist. If Ryan can't get something right, or if Ryan thinks he won't get something right, Ryan is not going to risk being wrong. So, whatever this "something" is, just ain't gonna happen. This is why, more often than not, Ryan remains silent in social settings. 

Small talk is a way of social bonding, a way of trying to fit in or be accepted. Ryan spends very little time concerning himself with fitting in. That's not to say that Ryan does not care about fitting in, but, socializing, bonding, and fitting in exhaust Ryan. Socializing for Ryan means too many social cues that he misses, too many words with double meanings, too many facial expressions that are hard to read and too much body language that is hard to interpret. More times than not, Ryan decides that small talk and "fitting in" is all just way too hard and not worth the risk, so he frequently chooses to be alone. Small talk is also used as a way to start or end a conversation or to fill in that awkward silence in a conversation many of us find uncomfortable. Since conversing is difficult for Ryan, and since silence to him is not awkward, but, a welcome relief, it makes perfect sense that for Ryan, small talk is BIG.

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Back when Denial and I were often engaging in small talk, Denial would tell me that if I just kept talking at, I mean to, Ryan, he would eventually respond. So, every day on our way home from daycare, I would barrage Ryan with questions about his day. Just trying to prompt him to say something. "What did you have for snack?"..."Did you take a nap?"..."Did you make any crafts?"...and my favorite, most terrifying question that always came last, "Who did you play with on the playground today?". All my questions would go unanswered as Ryan stared out the car window, wishing there was a balcony to toss me and Denial over. I kept thinking, every single day, if Ryan would just answer one question, if he would just connect with me on one thing, I would be so much happier. Just like my friend, Fence Post, I felt certain that all my chatter, all my small talk would eventually make Ryan creak. Funny, how in those moments when I was so worried and so scared and wondered, "Why doesn't he respond to me?", Ryan's happiness didn't come into my mind. Getting Ryan to small talk was for me, not him. All Ryan wanted after a long day of daycare, school, and expectations, was to finally be in a place where he was safe, loved, and free of the stress of what he was expected to say next.

When Ryan continually failed to engage in my small talk chatter, or in small talk with friends, Denial assured me that Ryan just didn't care about friends, so small talk wasn't even necessary. This "didn't care" conclusion that Denial enabled me to draw, lead to many quiet car rides home with only Spongebob playing in the DVD as company. For Denial to have me believe, or anyone believe, that Ryan doesn't care about the social bonding of small talk or making friends is unfair. Certainly, small talk may not be as desirable for Ryan as it is for his mother, Chatty Kathy, but, just because Ryan's small talk is minimal, doesn't mean he cares little about acceptance, it just means that for Ryan, it is easier, and safer, to stay silent. After all, with silence, there is no chance of social mishaps, there is no chance of misinterpreting what someone means, there is no chance of saying the wrong thing at the wrong time, so, there is no chance of getting hurt. Whether he likes it or not, Ryan needs to learn what to say, and how to effectively communicate to survive in a world full of Chatty Kathy's. Coming from the heart of a Chatty Kathy mom, I hope that one day Ryan will not only know how to small talk, I hope that maybe one day he will actually want to chat with me.
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Ryan has worked with Mrs. P, an amazing speech and language therapist, for five years, not because Ryan is non-verbal, not because he has poor articulation, but, mostly to help Ryan with his social speech, to help him engage in small talk. We all know that regardless of a designer Autism label, small talk is big when it comes to relationships with peers, teachers and colleagues. Ryan can do it, he can be taught to small talk, but, chances are, small talk for Ryan will always be BIG. Mrs. P has given Ryan the foundation he needs to small talk with his family, his friends, and his teachers, but, Mrs. P, no matter how wonderful she is, can't make Ryan want to do it. Autism may always have a hand ready to cover Ryan's mouth and keep him silent, but, maybe one day, Ryan will willingly and confidently push that hand aside. I have seen it happen...on rare occasions.

Needless to say, for a Chatty Kathy, someone who rambles on and on and on and on and on, having my son not engage in small talk with me, regardless of the reason, is still difficult. The AWEsome thing about my attempts at small talk with Ryan now is that Ryan has the communication skills to tell me, I'm "setting his brain on fire", or that I'm "speaking gibberish" or that he has "no possible idea" what the heck I am saying. Even Chatty Kathy knows when someone is nicely telling her to shut the he** up. I recognize that when Ryan gives me an inch, just a tiny hint of his willingness to engage in some small talk, I go for the mile, speaking gibberish at a high rate of speed that gets muddled up somewhere between Ryan's ears and his brain. In my hyper-crazed excitement to find Ryan, I wind up losing him again. Someone needs to tie a knot in this Chatty Kathy's pull string.
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You can only imagine that on the rare occasions that autism releases it's hand from my boy's mouth, and he does decide to strike up some small talk with me, I feel like I am getting a glimpse inside his soul. I never, ever take these moments for granted and I try so hard to tape Chatty Kathy's mouth shut. A few weeks ago, while driving to pick Kyle up at baseball, Ryan said, "Are you aware that the mineral fluorite has the ability to glow in the dark?". I almost hit a pedestrian. First of all, Ryan STARTED the conversation, second of all, he asked it in the form of a question (never happens unless it's "Where's my lunch?") and finally, I had no idea what he said because for once his words sounded like "gibberish" to me. Fluorite? What in the name of Sam Hill was fluorite? I tried to wrack my brain with a smart mineralogist type of response. Turns out, my, dumb mother response of, "I had no idea!! What else can you tell me about fluorite." was all I needed for my brilliant son to chat for a good five minutes about minerals. 

Thank God for minerals, rocks and an AWEsome science teacher. Those five minutes were a gift so beautiful and so amazing that my gift of gab only interrupted twice...and he called me on it both times by saying, "I wasn't finished yet.", and that's when I almost struck a light pole (Clearly Ryan's moments of small talk should not happen while I'm driving.). "I wasn't finished yet.", meant Ryan didn't give up, he didn't shut down because mom couldn't shut up, small talk got hard, but, Ryan stuck it out. Autism raised it's hand to cover Ryan's mouth and he crushed that hand with a big chunk of pyrite (aka Fool's Gold...I knew that one). Wow! It was without a doubt, the most amazing small talk, I have ever engaged in...and I'm still gushing over it.

As the van slowly pulled up to the curb at the high school, the magical moment ended, but, my heart continued to soar. Ryan crawled into the back seat, making room for Kyle, and turned on Spongebob. Our small talk had ended, but, it gave me a glimpse into my son's future. I pictured him surrounded with other sciencey like, smarty pants mineralogists in white lab coats discussing minerals (I realize mineralogists may wear polo shirts instead of lab coats, but, please let me have my moment) and Ryan not only engaging in the small talk, but, enjoying it. Surrounding himself with like minded people discussing something he is interested in, may be all Ryan needs to have small talk not be so BIG. I just hope that this group of white lab coat wearing mineralogists need a dumb, old Chatty Kathy to work in the lab cleaning up mineral dust and answering the phones, so I can continue to witness my AWEsome boy, finally being so comfortable with who he is, that small talk comes as easy as pulling a string.
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Said Ryan never...yet.
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The Early Bird Gets the Choice Donut

3/6/2014

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I looooove Saturday mornings...sleeping in, no early morning kid activities, and long leisurely breakfasts in my jammies with my hot off the presses, just delivered on Friday, People Magazine. My little piece of heaven. So, when I have to get up early on a Saturday, I am not only tired from celebrating the arrival of the weekend by watching three back to back episodes of Breaking Bad until the wee hours of the morning, I'm grumpy too. "The early bird gets the worm", so goes the old proverb, but, this past Saturday, Ryan and I weren't going for worms (I could just hear his annoyance at such a stupid saying), we were embarking on a 45 minute road trip with a quick stop at Dunkin Donuts. Here's the thing, Dunkin Donuts makes donuts ALL DAY LONG. Oh sure, they want you to believe that their donut baker lumbers out of bed with the early bird while moaning, "Time to make the donuts" so you feel rushed to be the FIRST ones in line for the freshest, choice donut, but, it's all a scam. You can be the late bird and still score a tasty, trans fat and cream filled donut. 

Ryan was about as thrilled as I was with the early morning Saturday change in routine, so instead of telling him the "early bird gets the worm" (eyes roll), I told Ryan the early bird gets the choice donut. Yeah, I'm as big of a phony as the "time to make the donuts" guy. Ryan whined, complained and stumbled out of bed and refused to brush his teeth because it would "ruin" the taste of the coveted donuts (he popped in a piece of gum after the donuts which I know a dentist would not approve of as a toothbrush substitute). Before we headed out the door, I was ordered to fill Ryan's Thermos with Welch's Grape Juice because my boy's elephant memory, recalled that Dunkin Donuts does not have Welch's Grape Juice and that their orange juice has pulp in it (the horror). We early birds, were so early, Ryan and I even had time to go inside Dunkin Donuts and peruse the plethora of choices rather than risk a donut catastrophe at the drive thru. Once we recovered from the near meltdown that took place when my early bird spied the strawberry iced donuts being placed on the shelf after our order was placed, bagged and paid for (clearly when it was "time to make the donuts" the strawberry iced ones weren't at the top of the old, tired baker's list), we were on our way, to our real destination.
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Ryan loves a road trip, and I love having him in the passenger seat next to me (even though I stress a little because I know he is safer in the back, but, now that he is 12 and the law says he can ride up front, there is no going back...figuratively and literally). Quality time, just the two of us, enhanced with a little donut sugar high. I tried for a while to chit chat, but, after being grunted at numerous times, I gave up and was equally happy listening to my boy singing, scripting and laughing at whatever show he was watching inside his head. In that moment, I sort of related to that early bird and his successful worm hunt, although I was tired and longed for my leisurely breakfast while happily admiring Matthew McConaughey in a black tuxedo (sorry Matthew, the white was a little too Saturday Night Fever for me) in People, maybe getting up early, really did enable me to score the coveted worm.

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Although I was enjoying the morning, I didn't get out of bed early and leave the Oscar predictions in my latest People Magazine sitting on the kitchen table for Dunkin Donuts. Nope, our destination was a Music Festival at a local college for piano students. This was Ryan's first time attending so I had no idea what to expect and for a boy who likes a plan and struggles with "new", he didn't know what to expect either. Ryan's fabulous piano teacher had written out a schedule for him instructing him when to be where. First up on the list, was a workshop on the Progression of Left Hand Accompaniment Patterns. What? I made Ryan LOL, even though he shushed me with embarrassment, when I did my best Charlie Brown's teacher impersonation. I am completely illiterate when it comes to anything music, so this professor's "wah, wah, wah, wah, wah", was like a foreign language to me. I tried to pay attention, but, after Ryan moved two rows in front of me, not because I was such an embarrassment to him, but, because the professor told him to (although, I'm sure he was relieved to put some distance between himself and his musically inept mother), I found my mind start to wander. 

As I sat waiting for the workshop to end, I began to worry about Ryan's "adjudication" on his piano skills which would be next. Ryan would be judged on various piano playing skills while in a room...alone...without me. As my anxiety began to escalate, awaiting this so called, "adjudication", I couldn't help but recall a different type of adjudication that I regularly attended as a juvenile probation officer. Waiting for a judge to make a different kind of adjudication for a different kind of kid. As a juvenile probation officer, it was my job to provide testimony to the court about the juvenile who stood next to me. I couldn't help but compare my role as a mother whose job it was to protect, advocate and fight for my child being that much different, yet, I struggled with whether or not Ryan would object to my testimony or if the judge would find my testimony relevant. 

I wondered, if at this adjudication for my child, do I present the facts...all the facts, or do I let Ryan take the stand on his own without my testimony? Will Ryan incriminate himself when he doesn't make eye contact with the judge? Will the judge think Ryan is rude if he forgets to say, "thank you" or ignores a question the judge asks that has nothing to do with the piano? What if Ryan drops his paper and refuses to pick it up because he hates the feel of paper? Will the judge think Ryan is not taking his adjudication seriously? Will Ryan's flat out refusal to put on a name tag because stickers have caused him anxiety since he was two, make him appear defiant? If Ryan refuses to take his coat off because the hot air blowing from the vents makes his skin feel dry and scratchy, will the judge think Ryan has no respect for the Music Festival, the adjudication and the piano itself? There was a whole lot going on in my scary head for a 45 minute piano workshop. 
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This battle going in my psyche came to a standstill when I watched Ryan practice in a sound room minutes before his adjudication. It was then that I decided not to hang my kid out to dry (he would have assured me he was not wet). I decided that if I don't want a label to define Ryan, even when his quirks and social struggles make him stand out, then I can't define him with that label at every turn either. There are times when The A Word, has to be mentioned...at a 504 Plan Meeting with school officials, at the dentist office when they realize total sedation will be necessary to fill a cavity (or three), at the pediatrician's office when a strep test is necessary, or at the hair salon when it's a new stylist, but, not at a piano adjudication. This was not because I didn't want Ryan to do well. It was not because my lack of interest in music minimized the importance of music to my son. The reason I let Ryan take the stand on his own was because unlike those courtroom adjudications when my words were needed to describe the juvenile standing before me, my words were not needed before a judge in a sound room. Sharing words....sharing The A Word, was unnecessary because this was music and music is one place where Ryan's quirks and differences disappear into the ivory of the keys.

I wished Ryan luck, although I knew it was not necessary, and Ryan walked past me, piano books in hand, a smile on his face and no name tag whatsoever. As I heard the judge greet Ryan, Ryan mumbled a monotonic, "hello", then he quietly closed the door and left me to wait on the other side. This was new for me, being on the other side of the door, not being Ryan's voice. Although I trembled with nervous energy, I had never been more proud of my son. As I listened through the door, frustrated that I didn't bring a cup to hold against the door to enhance the sound (AWEnestly people, I can't cut the cord completely), I did not hear Ryan speak in his British accent scripting Stampylonghead in a diatribe about Minecraft, I did not hear Ryan stumble over his words with his sometimes "cluttered" speech and I did not hear Ryan complain about the heat blowing out of the vents. All this spying, worried mom heard, was the beautiful sound of Ryan's fingers finding the right chords, timing his intervals and "expanding the use of the keyboard" as Ryan's label, his quirks, his differences, dissipated with each beautifully played note.
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I all but fell into the room once Ryan finished and opened the door, and I quickly and discreetly wiped away my tears so Ryan wouldn't reprimand me for being "too proud". Ryan bounced out of the room and said, "That judge guy was AWEsome and he said I did great!". In fact, "that judge guy" gave Ryan the highest marks, "superior", in every category with the exception of one "excellent". Clearly, Ryan did not need my testimony, the facts of who he is and what he is capable of, were evident without any input from me. I did not need to share The A Word with the judge who adjudicated my son because he did not need words or a label to see Ryan's ability. There will always be times when Ryan's quirks will make me want to quickly defend him by throwing that A Word under the bus, but, more and more, Ryan doesn't need excuses, labels, or me defining him. Ryan is finding his own place in the world, and as he has told me time and time again, "I don't feel different, I just feel like me."

This is one early bird, who is so glad that my love of sleep, a late breakfast and a date with People Magazine did not cause me to miss the worm. Not because I wanted the fattest worm or the choice donut, but, because I got to spend a day with someone who constantly puts the AWE in AWEsome. Someone who will never let a label, a judge or even his mother, define him. Some days it takes me longer to wake up than others. This past Saturday, even with my donut sugar high, it took me all day to wake up, but, when I finally did, I realized that even a full page spread of Matthew McConaughey playing strategically placed bongos in People Magazine, takes a back seat to the wonderfully gifted piano player sitting in the front seat next to me. 

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Pampered, Inspired and Humbled

2/23/2014

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This is a quick shout out to all the strong, loving, AWEsome moms I met yesterday at the 2014 Day of Pampering at the First United Methodist Church of Mechanicsburg. So many women shared their heartache, their struggles, but, mostly, their joy with me. To quote the beloved Dr. Seuss, my "heart grew three sizes that day". I promised these AWE inspiring moms that I would post the video I shared yesterday since there was a bit of a technical glitch with the audio. I also promised that I would invite everyone in attendance to my house for a glitch free showing along with wine, but, due to my public speaking anxiety, I failed to give the audience my address. I swear, it had nothing to do with my fear of the bill for the wine I would have needed to purchase for these amazing ladies.

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I was AWEstruck by your compassion, strength and determination to make sure your intricate, one of a kind snowflake remains visible and that their uniqueness is never lost in the blanket of snow. Remember, even on the days when your snowflake seems invisible to everyone, YOU will always make sure he or she can be seen. "Stand up Mother!" because you are not invisible either. Your child sees you and so does every mother loving their unique snowflake with a "different" ability!

Here is the clip from the Emmys when Temple asked her mother, who believed, "different, not less" to "Stand up mother". Makes me cry EVERY SINGLE TIME.
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I Have Spawned Into a Minecraft Creeper

2/20/2014

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Minecraft. If you haven't heard of it, then you obviously do not have school aged kids, you do not ever enter into retail establishments and you quite obviously have not fallen prey to social media. In other words, you must be living under a virtual pile of Legos. I admit, I'm no Minecraft expert, but, since Minecraft in the ONLY thing that comes out of Emma and Ryan's mouths these days, I have been dragged into the Minecraft world, with no sword or pick axe to gauge my ears out, so I've picked up on the basics.

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From what I have been able to grasp, right before my eyes glaze over from the obsessive Minecraft chatter, you are alone in a virtual world that sort of resembles an island. With little to survive than your bare hands and the various minerals and materials you can find in said world to build shelter, tools, and whatever else you need to protect yourself from the things that go bump in the night. Think Tom Hanks in Castaway, sans Wilson, and throw in a zombie or creeper...or two. There is a creative mode with lots of creative building options to enhance your anything goes virtual world and a survival mode where you also get to build, in order to protect yourself from the zombies, creepers and spiders who are just waiting to take you out. Tom Hanks had no idea how good he had it with only madness barking at his makeshift cave door. And unlike Tom Hanks, in your Minecraft virtual world, you can continue to be alone in your deserted island like world, or you can invite friends to join you.

In addition to the Minecraft game itself, there are also YouTube Videos where people narrate and record their actions in their Minecraft virtual world. The most famous of these is Stampylonghead, with over 1.6 million followers and over 818 videos. This dude, with his horribly overexaggerated and highly excitable British accent, has a lot of time on his hands. I swear, I hear Stampylonghead while awake and in my sleep. This is because Ryan can mimick Stampy's voice to a tee and does so most of the day and in his dreams at night. I swear, Ryan's British accent is so good, he could easily land a role on Downton Abbey. I understand why parents like this Minecraft game. There is a lot of creativity, imagination and wholesome, mostly non-violent fun that draws kids in like bees to honey. As cool as the game is though, I'm ready for a bug zapper.
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I had been telling Ryan for months that I thought he should try Minecraft since I read that tons of kids, including kids with an ASD, love the game, but Ryan kept saying it was stupid, because Ryan has a teenage brother who told him it was stupid. Needless to say, this teenage brother, who shoots Nazis in Call of Duty and runs from the police in his Lamborghini while playing GTA (Grand Theft Auto for all you newbs) feels that a virtual Lego type world, of old style graphics, is lame and since Ryan has worshipped Kyle from the moment Ryan was born, Ryan believed Minecraft was stupid too. Until Ryan's little sister built her first shelter and killed her first Creeper. Emma didn't reach "worship" status, but, she did impress her brother Ryan, which is more difficult than taking out a zombie with a diamond sword (we sound like a terribly violent family, don't we?).

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Ryan's worship like nature of his big brother Kyle is twofold. One, Kyle has an extremely big heart and he "gets" Ryan, and two, quite simply, is birth order. Kyle was here first, so, Ryan doesn't know a life without Kyle, but, you can bet all your Minecraft diamonds that Ryan remembers life before his little sister arrived on the scene. Suffice it to say, Ryan would never string the words "worship" and "Emma" together in the same sentence.

Prior to Emma's arrival, Ryan had Mommy's attention most of the time. After all, Kyle was older and let's be AWEnest, Kyle was easier. Ryan struggled with sensory overload which lead to meltdowns. Ryan had a hard time communicating, which lead to frustration and subsequently, more meltdowns. In those early years, with all those meltdowns (Ryan and mine), we were more like a run for your life Chernobyl Disaster than a happy go lucky family. So, for a kid who craved routine, who survived on same, and who counted on Mommy to get him safely through his day, a new baby was a swell idea! Poor guy. Ryan had no idea what he was in for, and quite frankly, neither did I.
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When Ryan came to visit Emma and I in the hospital after Emma was born, he literally threw a stuffed animal on her head and he did not acknowledge her presence. He was more interested in the buttons that raised and lowered the bed, the nurse call button (we almost got thrown out) and the cookie I had on my tray from lunch. This "pretend she doesn't exist" routine lasted a few weeks, until one day Ryan decided enough was enough and he locked his traitorous mother and screaming, smelly baby sister outside twice in one day.
 
It was a sticky, humid, beautiful summer day. The kind of day you appreciate in mid-August because you know all too soon, the heat and warmth of summer will soon be replaced with the crisp, cool days of fall. As I sat on the porch swing, sniffing my new baby's head, taking in the fading days of summer, I smiled happily thinking all was right with the world. My smile was quickly replaced with a puzzled expression at the slight "click" I heard at the back door. I saw a flash of red run past the window and I knew in an instant, that "click" was not the sound of summer wishing me well and locking me out, it was my darling son locking me and his baby sister out of the house...with not another soul inside the house.

I slowly got off the porch, trying not to jostle my sleeping princess and went and knocked on the door. "Hey baby, will you unlock the door and let sissy and I back in?", I said sweetly while peering through the window. There Ryan sat on the couch blatantly ignoring me while he happily played on his Leapster. "Ryan let Mommy in", a little more sternly. Ryan got off the couch and I immediately felt relief since I assumed he was coming to open the door. Nope. Ryan climbed on the back of the love seat, looked me in the eye (no trouble making eye contact in this situation) and shook his head no. Well, suffice it to say, that the postpartum hormones kicked in at that point, "Open the #*%$*%# door right #*%$%# now", as veins bulged out of my neck. Still, Ryan sat on the couch, shaking his head back and forth. No way, was his evil mother, who ruined his world, and that no good, smelly, loud, baby getting back in the house. Not until I called Dan, who had to come and let us in, not once, but twice (hormones, remember?). Yeah, it's pretty safe to say that Ryan did not "worship" his sister Emma the way he did big brother Kyle. She was a disruption...a change...a deal breaker. 

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Over the years, Emma has felt this preferential treatment for Kyle over her when it comes to Ryan's love and affection. Most days she accepts it, and other days, it breaks her sweet, sensitive heart. I once found a birthday card Emma had made for Ryan crumpled up and stuffed under her bed. Drawn on computer paper and carefully folded in half, was a 4 year old's exact replica of our backyard with a stick figure of a Emma and Ryan happily swinging together, which at the time, rarely ever happened. The crayon strokes spoke volumes of this little sister's true desire, to have her brother interact with her, to have her brother play with her, to have her brother look at her, the way he looked at Kyle.  When I asked Emma why she didn't give it to Ryan, her dejected little shoulders shrugged and she said, "Because he will think it's stupid.". I told Emma to give it to Ryan anyway. Ryan looked at the card, tossed it on his dresser and said, "It's not my birthday anymore" and went back to his game. As much as I wanted to smack Ryan on the head with the card, I tried to explain how much love and time Emma had put into making his card and that his actions hurt Emma's feelings. This past Valentine's Day when Emma made a card for everyone in our family, except Ryan, I didn't need to ask why and I didn't insist on her running up to her room and making him one. Ryan would have thought the card was stupid (again), unless of course Emma had taped candy to the card. Ryan loves his sister, he just doesn't communicate that love in a way that Emma understands...yet.

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Although I have explained autism to Emma and I have read books about autism specifically written for siblings of an autistic child, it's hard for a 7 year old's head and heart to grasp. AWEnestly, some days it's hard for a 44 year old mother to grasp. It's difficult for Emma to understand why Ryan doesn't hug and kiss her like Kyle does. It's hard to understand why cards and pictures made with love are rejected or ignored by him. It's hard to understand why she can connect with with every person she meets, but, not the one person she really wants to...her brother. Then along comes a guy named Steve with his blocks made of cobblestone, dirt, and clay as well as a pick axe and sword to keep the creepers and zombies out of their carefully constructed, mutually adored, virtual world and block by block, a connection has been made. 

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Who knew the phenomenon called Minecraft could not only build homes in virtual lands, but, Minecraft has helped build a relationship between a brother and sister that once seemed as unlikely as a creeper and zombie sitting down for afternoon tea. A bridge has been built that not only connects their virtual worlds, but, has also connected their hearts. Emma had to go to a deserted world and dig deep to find the proper materials to build a pick axe that was strong enough, and unique enough, to finally break through the wall of autism and find her brother. And Ryan, who for so many years, kept building his house with thicker, stronger bricks, finally let his little sister in and has promised her that he will continue to do so, as long as she doesn't chose a user name that is "stupid and ridiculous". 

Now I'm the creeper standing outside their real world, outside Ryan's bedroom door where they play Minecraft for hours, hoping that neither one of them senses me and comes at me with their diamond sword. As I slowly crack the door while creeping, I see Emma on the top bunk, the glow of the iPad illuminating her smiling, happy face. On the bottom bunk is Ryan, wrapped from head to toe in his Angry Birds blanket, the only sign that someone is under the blanket is the perfect British accent coming from Ryan's mimicking lips. As an unwanted, spawned creeper, I quietly and stealthily push the bedroom door open wider, risking my safety by breaking the darkness with the hallway light in my attempt to get even closer to this somewhat magical moment. As I hold my breath, trying to stay hidden, I finally hear, with no trace of Stampylonghead's British accent, Ryan yell, "Hey Emma, can you come into my world?". As I stifle my tears at the deeper meaning to those long awaited words, I swear Emma feels the dual meaning too. I can almost feel the joy emanating from Emma's heart as she happily yells back, while tap, tap, tapping her iPad, "I'm coming Ryan! I finally found you in your world!".

I recognize that when the Minecraft obsession ends, so may the intensity of the connection, but, for now, Ryan is not locking his little sister out on the back porch...he has finally...finally, let her in. I hope that whatever zombies and creepers lie ahead in the real world, Ryan will tackle them with a diamond sword in one hand, while holding onto his little sister with the other, because alone he can build a shelter, but, together they can build a fortress. A fortress that hopefully, will keep out their mean, old, creeper mother who makes them occasionally leave their virtual world for the real one.
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Building together to keep out creepers like their mother.
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    Definition of Awe:
    "a mixed emotion of
    reverence, respect, dread and wonder inspired by authority, genius, great
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    spelling AWEtism.

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