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My View From the Spectrum

3/9/2015

2 Comments

 
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Well, what do you see? White and gold? Blue and black? Pink and gray? Zombies retreating since clearly we have no brains to eat which is evident by the amount of time we spent debating which colors we see when we look at #thedress? AWEnestly, no wonder aliens have landed on our planet and never returned. I'm sure extra-terrestrials think that if humans can cause social media to explode over the color of a dress, we really are a race just NOT worth conquering.

Although, clearly, #thedress is gold and white, I'm not here to argue or belabor the point because quite frankly, I'm so over it that I kind of wish an alien would beam me up so I can stop reading about it, hearing about it and (please accept my apology) blogging about it. However, before I depart with little green men and take up residence on some planet light years away (I sure hope they are more advanced than Pennsylvania and they sell wine in their local food mart), I have to admit that #thedress got me thinking. According to what I've read by so called, "experts", it seems to me, that depending on how you see something, really influences what you see.

While perusing social media last week, not only did I discover that if you see #thedress in white and gold colors that means you are more prone to loving Justin Beiber (seriously aliens, just beam me up now), I also discovered while reading two very different posts on autism (having NOTHING to do with #thedress, say hallelujah), that people tend to see an autism diagnosis in varying colors too.

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The one post was written by a mother who has a severely autistic child and she was on a bit of a rant about people like me. People who go on and on about acceptance, the benefits of neurodiversity and "romanticizing" an autism diagnosis when her child is unable to speak, unable to communicate his basic needs, and will never live independently. This mother who sees her son suffering day in and day out in both emotional and physical pain wants her child to be accepted, but, more than anything, she wants her child to be cured. She loves her son, but, she hates autism, and AWEnestly, who can blame her?

The other post I read, was written by a young man living with autism. Clearly, this man has his own struggles with autism, but, he is able to communicate his basic wants and needs while advocating for acceptance and neurodiversity and being somewhat offended by those who want his autism cured. In this young man's mind, he does not see his autism as an illness, a disease, or something that needs cured, he sees autism as a different way of thinking, a different way of being and all he wants is for the world to see his side too. This young man living with autism does not see the need for a cure because in his mind, taking away his autism means taking away a huge part of who he is, and he is quite happy being exactly him.

White and gold, blue and black. How you see it, influences what you see and when it comes to autism, how and what you see, all depends on your view from the spectrum.

Just like I see #thedress as being white and gold, I see an autism diagnosis as a need for acceptance, support, and understanding. For my son who is mainstreamed in all his classes, who can communicate his basic needs and wants, but, who is isolated due to his rigidity, his scripting and at times, his odd behavior, I preach for acceptance. I beg for a world where neurodiversity is not seen as something bad, but, as something good. I may "romanticize" these differences, but, my view from the spectrum allows me to see my son as not someone who needs cured, but, someone who needs acceptance and understanding.

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For a mother of a 25 year old non-verbal child, her view from the spectrum is very different than mine. She sees a world where a cure for her son's autism is essential. A cure for a child whose sensory system is so overwrought that the sound of a car horn several houses away is so horrific to her child that she is virtually a shut in, unable to take her son out, unable to leave her son alone. This mother may hate the impact autism has on her son because her view from the spectrum is one of pain and suffering. And what parent wouldn't want her child's suffering to end? This woman begs for a cure, and I can't blame her.

Two very different views. How something is seen is determined by what is seen. 

My view from the spectrum allows me to see how much Ryan struggles to make friends, and as a mother, it feels like pouring salt in an open wound. My view from the spectrum also allows me to see how difficult language is for Ryan and how that impacts his communication which is why most days, Ryan is more comfortable being alone than he is socializing with others, even when those "others" are his family. My view from the spectrum allows me to see when the touch of paper, the sound of an alarm, or an unexpected touch causes extreme discomfort for Ryan and sends his fight or flight response into overdrive pushing others even farther away. My view from the spectrum certainly enables me to see that for my son living with autism, sometimes, being "different" is hard.

Here is the clincher. Just like I see white and gold in #thedress, along with the negatives of an autism diagnosis, I see the positives. I see a boy who has perfect pitch and I have no doubt that autism has allowed him to hear and feel music differently than those of us without autism. My view from the spectrum allows me to see how Ryan interprets the world so much more literally than most of us, and how AWEnestly, his interpretation makes so much more sense than ours. I also see from my view a boy who feels and believes in things so passionately, that I think if most of us felt and believed like Ryan did, the world would be so much easier to understand.

My view from the spectrum also increases my worry that others who have a very different view from the spectrum will cause my son to see his autism as something that should be fixed or cured, which would cause a lot of self doubt and low self-esteem in a young man who is utterly fabulous. Exactly. The. Way. He. Is. 

I would never want Ryan to think for even one second that he is in need of "fixing", "curing", or "treating". I want Ryan to understand that yes, autism makes some things more challenging, but, that an Autism Spectrum Disorder alone is not what defines him or what predicts his future. So, yes, if I "romanticize" Ryan's autism diagnosis by pointing out all the positive attributes autism brings into his life and by advocating, "different, not less", and by preaching acceptance and neurodiverstiy all in an attempt to make Ryan feel loved and understood, then yes, I am the next Danielle Steel with a romance novel coming soon to a Barnes and Noble near you.  Yet, I understand that those who have a very different view from the spectrum may want to burn my upcoming romance novel right at my feet.

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Whether it's the color of #thedress or an autism diagnosis, how you see something really influences what you see. I hope that my view from the spectrum does not offend others because how I see autism differs greatly from how they see autism. 
What we see, may be as different as gold/white and blue/black, but, I would like to believe that regardless of our view, regardless of how and what we see, our hope is one in the same. And that is for each one of our children to feel loved, happy, and supported, regardless of how and what we see, because after all, it is their spectrum, and we are just the ones who get to share the view with them.

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His shorts are blue and black. Not gold and white. Just in case you were wondering.
2 Comments
Leigh
3/10/2015 09:45:06 pm

You have some great points in here Kate. Good read!

Reply
Sheryl dicker
3/11/2015 12:18:06 pm

Reply



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